Jusy a couple of quick (?) points
I agree that Aimspro's early history is not
one that automatically
inspires faith... but it has come a long way since then and rejection on those grounds alone seems as naive as accepting Aimspro's worth on just a handful of patients. There are, however, substantially more than a handful, some scientific data albeit in limited quantity and a number of high calibre medics and scientists (none of whom seem to use 10 foot poles!). My biggest beef is with those others who dismiss it without being prepared to look into it and just rely on inaccurate assumptions or the word of someone else (often equally ignorant) who has letters after their name.
It seems bizarre that there is such frequent criticism (often ignorant as stated) of a product that, even if it lives up to half
of its promise, stands to be hailed as utterly remarkable. How many other treatments (for MS) do anything more than hold it back to a degree or partially reduce the frequency of episodes? And do they all have a clear safety record? And are they nice and cheap? "At least they have clinical data to back them up????".... One particular product seems somehow to have slipped through the net recently. Clinical data isn't the be-all-and-end-all nor is it the only
valid analysis. Anecdotal evidence doesn't have the same cachet and it doesn't bear up as well as clinical data but that does not mean it is worthless or irrelevant. If a high proprortion of a significant number report substantial change then surely that has some
merit and deserves some measure of support.
The only valid criticism as far as I can see is the comparative lack of clinical data. Fair enough but I don't see anyone other than Daval being ready to put their hands in their pockets and fund it. Rather than engage in some "Aimspro-bashing" it makes a damned sight more sense for these people to lobby for more assistance so that a promising product is not allowed to wither.
The reason I and others like me campaign on behalf of this treatment is as much about wanting it to become widely available asap
as it is also about resisting the detractors and offering some well-deserved support. Their is an unmarked threshold somewhere below which Aimspro could well sink. I don't know where it is and I'm not prepared to find out that Aimspro has just "drowned" when I could have helped it survive and flourish.
For me it's about my wanting it to succeed and giving active support in the meantime (unless I am proven
wrong (by hard scientific data!) and not saying "oh that can't be any good 'cos it doesn't have the right pedigree or hasn't followed the normal path". I am not going to sit apatheticly by either - that's just as bad!