Hi there. Thank you so much for your comments, they are appreciated. It is and can be frustrating not getting information on something that you hear wonderful things about and I feel for anyone out there who gets frustrated over it. Please look at steamers message below, he will also back it up that there are legal issue's with the release of information. No I do not speak for the ARGLLE group!!!!!!!! Yes, we all would get excited when you see a Med work on someone. Do you get excited about it if you hear about it second hand from a close friend, yes, somewhat but you will still be a little skeptical right? If you hear about it third hand and so on more and more skeptical, correct? But what if you saw it used first hand on a person, and not only that, you were a health care provider with decades of experience having worked with M.S patients and of course many other neurological diseases + illnesses. As you are a health care provider you get to see first hand how many of these drugs work or and don't work! You see the Meds supressing, but not restoring much function. You see your M.S patients decline over the years. You see them go up and down, each time not returning to there previous level of function. Eventually they end up in a wheelchair and the story go's on from there. They are given SF1019...after a few injections, typically 1 per week for the first twelve weeks, then if appropriate two per week with re-evaluations every three months...you see the patient walking again. They begin to state that the pain in there feet, the neuropathy is decreasing and in some cases resolving. You can hardly believe it...But you do, you have to, your seeing it first hand. Do you have to keep taking the shots the rest of your life, depends on the length of time you have had the disease and what disease process you may be treating. But you do believe what you see as a healthcare provider, but when you hear the news from a second hand source let alone on a website, what are you going to believe. A person knows what they know, I can live with that, I am okay with that and glad for that first hand knowledge. Is this a patient that I have treated, nope, but it doesn't have to be, I know them and there history and it's nothing short then amazing and wonderful. I hope some of my message was understood even as the scriptures need to be understood!!!
Please refer to Steamers message that was posted but disregard the part regarding wheather I or the UTNURSE has aurthority to speak for the Arglle Group, I and the UTNURSE never made such a claim and that is rediculous. I think this was not a great reply in regards to welcoming the UTNURSE into the forum!!! I am pushing in my own community for awareness of SF1019. I think people get to excited and on the other hand, I know what I know and have seen what I have seen and know others have had similiar experiences with SF1019. When I found this forum I thought I could simply connect up with others who had experience with SF1019 also in a professional and confidential way but have only come in contact with the UTNURSE. Everyone seems to argue weather it exist, is it a scam or works and so on. I am not sure why persons bother answering my comments if they don't believe it exist. If you want to know if it exist, do alot of homework, call the Arglle group, find someone who has used it, know the right people and that is just luck!
No I am not the patient. Thanks again for your reply, all your questions and frustration are noted. Yes there is always more to tell but that will come in the future. Right now I am only looking to connect up with other health care professionals that have had direct contact with SF1019 to discuss confidential what they have found. It is obvious that know one will disclose persons names that are using SF1019 without consent. I hope all good things for you in the future. Kolob signing off. UTNURSE please contact me through the private message email to make initial contact. Please look in your private message box for my message. Thanks
kolob, you seem overly passionate about a treatment that as far as we know, you know has helped two people. I can not help but think there is more to your interest in this treatment. Do you have MS? From what I gather, you haven't had the treatment.
You seem very clear in pointing out what it isnt, but avoid letting on too much as to what it is. I'm sorry, but it just seems as if you are not telling us everything.
I have been connecting up with different doctors speaking with them concerning SF1019. If there are any other M.D's out there that have experience with SF1019 or are considering performing trials with it I would be interested in them contacting me or being contacted by third parties.
This line in your first post leaves me with the impression that you are more than just an amazed bystander. So is there more?
Jaded? who me?
Any questions I will answer the best I can and with what I can say.
1. Is there any published data on it?
2. What is it that is limiting "what you can say"?
3. What does it actually do? Cure (ie Stop)? recovery (ie reverse)?
4. Is it a once off treatment? or is it required to be maintained through life?
5. What is your full involvement with the treatment?
6. Is it in any formal huiman trial? This person states its in Phase III, did we miss I & II? http://www.msrebel.com/My%20SF1019%20vaccine%20treatment.htm
7. Is it kept at -20C like aimspro?
I also found the following http://www.msrebel.com/ICPF%20%20VACCINE.htm
supposedly from Dr Frank Morales
Which led to the name ICPF (previous title?) which lead to http://www.freepatentsonline.com/20050042635.html