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PostPosted: Sat Aug 20, 2011 1:33 am 
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Location: Ireland
Hi all,

I was wondering if there are any other benefits associated with Fampyra other than improved walking speed. I am not particlarly concerned with my walking speed but with my walking. I really look like a wreck when I walk and can no longer walk unassisted. I also wonder about the side effects that caused a previous poster to cease after just one dose. Being able to walk better would be great but when I need to go to the toilet I need to get to the bathroom fast. Any improvement in bowel/bladder issues?
I will be having tysabri infusion 49 in 2 weeks and while I noticed a huge improvement in my stamina when I started but I seem to have levelled off since then.
Gymbuff


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PostPosted: Sat Aug 20, 2011 7:17 pm 
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the 2x's daily recommendation increased pain and spasticity for me so now i take one pill a day...increases speed...for me i think that is all...

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GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...


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PostPosted: Thu Mar 07, 2013 12:42 am 
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I am on Fampira now for 5 weeks and I noticed next things:
- walking speed improved - 7,.. m in 3,8 s
- in 2 min I walked distance 187 metres
- I can more easy stand up from any position
- I am less tired - I have more energy
- my stability is better
- my nystazgmus is the same as before - I expected less nystagmus
- my urin urgency improved so I dont have to go to toilet at night
-
Anyway fampira is giving me an energy to be alive again and helps me coping with daily life.

But I was wondering is trere any analyse about the weight of person regarding Fampira dosge. I am taking 10 mg twice a day, buy I forgot few times and it was the same.
II have 63 kg and I would like to take it just in the morning.

Does anybody knows anything about that?

Regards

Robert


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