Need Ampyra Advice

Dalfampridine, or Ampyra, is a potassium channel blocker that is shown to improve visual function, motor skills and relieve fatigue in MS patients.

Need Ampyra Advice

Postby Loriyas » Wed Oct 09, 2013 11:30 am

I am torn. My left leg is weaker than my right and always have been. I have been working out faithfully and it remains the same. Although both legs are getting stronger, the left will never catch up to the right. This weakness causes a discernible limp and left legs tires more quickly. Last year my neuro gave me a prescription for Ampyra and it was my choice as to whether I wanted to start or not. He said I would know in a couple of weeks if it helps or not. I never started it. I have read from several patients that they believed that Ampyra caused worsening of their walking so I was too afraid to give it a try. Well, I am still debating. I don't think my walking is any worse than last year. But sometimes I think I should give it a try. I have 2 bottles of Ampyra that I received from the manufacturer last year so I have plenty to give it a trial. But I certainly don't want to worsen things! Advice and comments are welcome!!
Loriyas
Family Elder
 
Posts: 594
Joined: Sun Apr 02, 2006 3:00 pm
Location: Naples, FL

Advertisement

Re: Need Ampyra Advice

Postby DougL » Wed Oct 09, 2013 11:46 am

my wife did the free one month trial. did not notice any positive affect during the month.

after stopping, her walking got a bit worse. maybe it was the normal ups and downs of MS or maybe it was the Ampyra.

if you are able to remain the same using diet and exercise, i think you should stick with that for now. just my opinion.

(BTW - make sure the Ampyra is still good. not sure if a year is too long or not. we were told 6 months is okay)
User avatar
DougL
Family Elder
 
Posts: 373
Joined: Mon Jul 11, 2011 3:00 pm

Re: Need Ampyra Advice

Postby Loriyas » Wed Oct 09, 2013 1:11 pm

Thanks Doug. You just reaffirmed what I was thinking.
Loriyas
Family Elder
 
Posts: 594
Joined: Sun Apr 02, 2006 3:00 pm
Location: Naples, FL

Re: Need Ampyra Advice

Postby CureOrBust » Thu Oct 10, 2013 4:24 am

4-AP is not stable, and all the packaging of Ampyra confirms this to be the case. A 1 year old case is not what I would base any decision on anyway.
User avatar
CureOrBust
Family Elder
 
Posts: 2914
Joined: Wed Jul 27, 2005 3:00 pm
Location: Sydney, Australia


Return to Ampyra

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service