Hi Sarah, and thanks for the warm welcome!
Yes, I'm Sojourner's sister
and have her to thank for "delicately" offeing me information on the possiblility of infection being the cause of MS.
You on the other hand will always be my real inspiration and your recovery was my continuing determination to stay the course..... of learning.
I can't say this enough: It was very very difficult for me to believe that my Neurologist could be wrong! He is a very highly regarded, very visible Dr in his specialized field of MS,,,,a researcher and speaker throughout the US.
How then, could he be wrong! ? I have nothing but kind words to say about him, I know he cares deeply about his patients, as I'm sure most Neurologists do.
No blame game from me, These neurologists aren't yet educated on the chance of MS and infection being related. For this reason,,,,I don't "blame" him and hold no grudge or any bad feelings toward him.
Actually, I intend to make an appointment with him; MRI's in hand along with educational material and hope to eductate him on this connection. Educating our doctors (our neuros) is IMO most important.
He then has a choice to look down this road, or not.
Reading about halting your progression Sarah became vital to me in my quest for answers. I couldn't escape your good, hmm, very good results
This because my neuro did say (2003) there was the chance of me needing a wheelchair later in life! Simply stated: that Rocked My World!
How is it possible to "suddenly" find myself in that position? In 1990 he said with the research they have, MS sets a pace. In my case, it was 3 years between episodes and he said I would more than likely have a slight - minimum effect of MS in my lifetime. Years later it was obvious the research showed a different outcome.
As my husband and I drove home with my first prescription of Copaxone in hand I realized my disease was and still is a mystery to the medical profession,,,,and when they state there is NO CURE for MS, my chances of also going downhill in later years was starring me in the face!
This was my
reason, along with Sojourner giving me small bits of information she learned to take my disease in my hand and find answers.
As for the very powerful punch of antibiotics I'm one: yes, I agree, it's aggressive.
This from my VERY conservative doctor! He does however believe in ridding this bacteria from me as quickly as I can tolerate it. I run my ship, if I find it's too much to tolerate, he follows my tolerance.
I'm pushing through treatment, not over doing, but "hanging in there. The herxes are uncomfortable,,,but the feeling GOOD days are soooo worth it. And each day that I feel GOOD, I continue to feel good.
Long gone are the days of feeling good, than sliding backwards....I feel good and go forward....feeling BETTER!
Where would I be without the internet and these forums,,your forum? Staying the course....and waiting for a more than likely bleak outcome.
Thank you SARAH, Thank you DAVID!