I know that there are far more people than have posted on this site who are either using the Vanderbilt protocol or David's. I also know that to do it properly one has to be on one or the other for much more than six months, because even if one's CSF shows as having been cleared, even if there is just one lone pathogen lurking somewhere, it might re-emerge and leap into action. I was on David's protocol for a year and even now am taking booster doses every two months. At the moment, it is debatable how long these should continue for.
Daunted is correct about the trials: there will be another one at some point organised by Vanderbilt, but they really need the ability to do something longer, involving flagyl. The trouble is, there is no money to be made from out of patent antibiotics. Or any antibiotics come to that. Couple this with the fact that only a tiny percentage of neurologists give any serious thought to MS as being caused by an infection and things fade more and more into the future.......................
As to the success rate of David's regime, I am the only person who has been doing it for two years. I would say that it has been a success with me, but we will have to wait for my next MRI, next month, to have positive evidence. Robin, as you know, has given up and moved over to the campath trial, which he feels at the moment is proving successful. Other people have stopped because they wanted instant results. Most people are happy to continue, though.
As far as transferring to the wider MS community, as more and more GPs become alerted to the treatment, it will perhaps come from them rather than the neurologists. Also, as you might have seen on this site just over the last few days, more physicians with the disease and with partners with the disease will certainly raise awareness. At the moment I can't put anything on the MS societies forum without having it removed!
As Ram Sriram from Vanderbilt said to my husband a few months ago, "We have just got to fight this from the trenches." I hope I am helping in this.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.