And thank you for your response! I just received the abx combo, and am going to prepare my body as well as I can for what's to come. Can you (or anyone) tell me how long before I should notice something? I've read about the herx reaction, and want to be prepared.
On another topic, my diagnosis of MS has never "felt" right, although it's only been a year and a half. Looking back, my first symptom was Bell's Palsy in 2006, followed by flu-like illnesses for much of 2008. I've done a great deal of research on Lyme disease as well, as much of my early history falls in lime with that bacterial infection.
In addition, after receiving Solu-medrol in the hospital last year, I ended up exploding into 2 months of misery. I was out of work, lost partial vision, had memory loss, cognitive impairment, tremors, etc, etc , etc. I recently read that people with a Lyme infection (though I've tested several times and always test negative) respond horribly to steroids. I'm wondering if anyone else has had this experience? If this is in fact something that can be attributed to Cpn as well. When I asked my Neuro about it, he brushed it off as "you may have had minor improvements you didn't notice". Really? Because those 2 months certainly didn't feel like improvements!!
I hate that we've all had to resort to being our own advocates with this diagnosis. Neuro's are happy just pumping us full of chemicals that do nothing for most of us. I just don't get it...
RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12
Late Stage Lyme - 12/10
Too many meds to list!!
Remember, today is the tomorrow you worried about yesterday..