Hi Bromley and Melody,
I will try to answer some of your questions as best as i can: Both from what I learned while reading,,,and then by experience.
As for Neurologists beginning to treat with antibiotics? I don't think there is too much change yet, but the research is there, and for how long this research can be ignored? don't know.
I intend to take my MRI's with me to my neuro along with all the information I have regarding Lyme Disease. Most importantly, how to test for lyme disease...
and I will have a DVD in hand Titled:
Dr. Steven Phillips: "Chronic Lyme Disease: Connection to MS- Facts behind the controversy"
This lecture was recorded at the Lyme Symposium held at the University
of New Haven on May 12, 2006. The symposium was organized by
Dr. Eva Sapi and her Lyme Research Group at the University of New Haven.
If anyone is interested in also giving their neuros this research here's how to get this lecture.
77 minute DVD $15
Please send a check or money order payable to University of New Haven (with your address) to:
Eva Sapi Ph.D.
University of New Haven
Department of Biology and Environmental Sciences
Cellular and Molecular Biology Graduate Program
300 Boston Post Road, Dodds Hall 314
West Haven, Connecticut 06516
for me is was well every penny, a bit over my head because it's for the medical community. And by the way, the $15.00 is for Lyme research at the University of New Haven.
they just held a new Symposium this past Saturday...I hope they will offer a DVD for this lecture also.
As for the concern over the "mis-use" of antibiotics?
So many other concerns IMO, I have Lyme Disease, and antibiotics is what is making me better! For years, there was nothing to treat MS,,,and then I was prescribed Copaxone.
It states on the prescription: This Is Not a Cure for MS.
What exactly does Copaxone do? and what is it doing to my liver?
After getting a lyme test, and no not an ELISA ( too insensitive) I have a clear path "why" I have multiple scarring; and the protocol of antibiotics are making me better. They treat Tuberculosis for long periods of time, along with kids with acne and tots with ear infections; so I'll take my chances.
Here's some reading on antibiotic resisitance in our food supply. IMO, it could very well be the true culprit.
"The larger issue of antibiotic resistance has not been addressed. The micro-organisms / bacteria our cattle, chickens, fish, etc. come in contact with daily while they are being fed antibiotics are the bigger issue. Many micro-organsims are becoming antibiotic resistant thanks to feeding on our food animals who are fed with antibiotics. Think of how many ticks, fleas, mites, mosquitoes etc. feed on the back of one cow daily. Each time these bugs feed they are getting a small dose of antibiotic that is not at levels enough to kill micro-organisms/bacteria in their guts. These micro-organisms, through rapid regeneration, evolve levels of resistance to the antibiotics. This evolution crosses over into levels of resistance to human grade and type of antibiotic.
"The real culprit in antibiotic resistance is the overuse of antibiotics in our global farming industry and until that is dealt with any attempt to keep humans sick for fear of creating super bugs is simply a tool used to again create fear in the public, and medical community, against using the necessary antibiotics over a long enough time to heal us. Treating victims would cost the global medical insurance industry billions of dollars...so keeping the fear alive is standard fare for the profit driven market.
On any given day we have thousands of people arriving at our airports from countries around the world where antibiotics are available without prescription at local vendors. They will undoubtedly carry antibiotic resistant bacteria to our shores as well."
"One protocol for rheumatoid arthritis allows Minocycline to be used
for 48 weeks, yet antibiotic/minocycline use for far fewer weeks is
condemned with respect to the arthritis-similar condition of Lyme
My prescription for Minocycline states:
used to treat rheumatoid arthritis
I wonder how the docs differentiate which patients they give Minocycline to and which ones they don't? hmm,
People are treating their arthritis with Minocycline and are seeing improvement.
There is so much misinformation still about the connection between MS and Lyme Disease, and Fibromyalgia, and Lupus, and CFS, and sooo many other diseases, I would recommend this: rather than getting an ELISA test, and then having a negative result (most of us do test negative)
just ask your neuro or ID doc to have a CD57 test done along with an Immune Complex Ciq. (LabCorp is a bit better than Quest for testing btw).
Both of these tests allow the docs to have a look at your immune system. Are the antibodies clumped together etc.
for instance: in my case my CD57 was 21. The correct normal range is 60-260.
as for my Ciq: I was in Alert status
my immune system was "sleeping", it wasn't recognizing either the Bb (burgdorferi borrelia or the Cpn) bacteria. So now I boost my immune system with vitamins and minerals. (Wheldon Protocol).
Kind of opposite of what I knew about MS. I was always careful NOT to Stimulate my immune system....now I do just the opposite. I stimulate it as much as possible....and it's finally waking up! thankfully. Now if I re-test for Lyme I would test positive....even with a flawed test as an ELISA. Why? because my immune system (antibodies)was stuck together -it couldn't recognize the bacteria -it "couldn't" fight the bacteria...
My immune system was never attacking itself.....it was sleeping.
the Bb bacteria, loves the cold....
I have a low body temp, I average 97.1
I don't like the heat, my MS symptoms flair
This is exactly what this bacteria needs to survive. Cool temperatures
and steroids. Steroids are its food source.
I just had my Ciq done again and it jumped! Good news
I hope I helped a little in answering your questions. I can only tell you what Ive learned,,,I'm not a doctor just a patient with MS/Lyme.