Welcome! this is the NICEST group of people! I owe a big Thank you to one and all for every kind reply to my questions and queries.
I'm going to start abx soon. I met with my new doctor and had blood drawn yesterday. She usually uses the Marshall protocol and often treats CFS and FMS I understand, and has good results. I am hoping to convince her to go with the Wheldon regimen for me. She is reading this board to see how she feels about the approach. I sent her the link at her request yesterday.
Teresa you said "How were you before the treatment?
I think Marie is right. It would be interesting to have data. "
I do appreciate this support. Thanks . It should not be hard to do, no one wants to do extra work, but if you make an entry please try to quantify it so a reader knows that you are better somehow. Gosh, when my doctor reads these posts I want her to feel like WOW! I want that for my patient. not "hmmmm. Are they better or not? I can't tell..." Many past entries fall into the hmmm category
Reading about people on the VU patent is interesting, but they were all cultured by the special CPn test they do. It might be argued that CPn is a special different disease and most people with MS should not do it because they do not have CPn unless they cultured positive. WE are a cross section of MSers. People who are diagnosed with MS who're all using this empirically with no test for Cpn just like the readers who come here curious.
Also we are using a different protocol than VU with flagyl and more interesting herx. One might wonder reading the board "Is the flagyl possibly making people worse? It sounds like it might be...." So if you post that you "ain't doin' fer beans" because you just did a pulse and later you regain new ground, be sure to tell us about that in a descriptive post so curious people can see that you ARE gaining ground, not just gaining and losing the same 3 steps over and over.
So I will not bother people by posting about this again unless I'm asked about it directly. I'm boring myself.
Thank you everyone for your kind tolerance.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics