My liver would not tolerate Avonex, Doxycycline, Rifampin, Flagyl, and Crestor (a statin). First went Crestor then Doxy and Rifampin. That was all of Feb. Now I have more knowledge and have made it VERY clear that I will stay on Doxy/Rifampin and do without the Avonex if need be. I would like to continue with the Avonex for any protection it may have until my next MRI which I would do now if I could. I was all of Feb. without abx because of LFT. Turns out if you need to arm yourself with enough knowledge to fight your own battles, you better do it. I think USA neurologists "MS specialists" should do some of the same and get out of the hole I suspect they are in.
I am still not certain what qualifies as a "herx" but I finished day 3 of Flagyl last night after not taking my evening dose because I could not do evening duties at the barn. No, Marie, I do not "bail out" when I get a cold. When I played in the orchestra I always said if I had to crawl, I would get there. This is serious stuff and in the end, doesn't physically affect anyone else. I will try very hard to fulfill my end of this bargain with myself.
I woke up this morning remarkably clear-headed and feeling wonderful and able to walk better than for years. I took my first day 4 dose, and in the 3 hours since, have regressed some but it was an exciting glimpse of improvement between the Flagys 9 (now on day 4) and 10. I have been saying for a while now that if I stopped here at this level, I could live with it, but apparently there is more to come. Every day has always been an adventure but this is all amazingly rewarding. The implications are so far-reaching. Every MS person should have access to this. Please keep posting, all you world-wide friends out there!
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.