This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 5:31 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 4 posts ] 
Author Message
PostPosted: Fri Nov 05, 2010 11:13 pm 
Offline
Getting to Know You...
User avatar

Joined: Tue Dec 08, 2009 4:00 pm
Posts: 17
Hi to any one out there that may know, I was diagnosed with PPMS 6 years ago I started on Dr Weldhams anti biotic protocol 8 weeks ago I have only been taking the first 2 Anti biotics, Doxy ans Roxy, I am about to start the pulsing of Flagyl, my question is that since I started, my walking has become so much much worse as my fatigue has, its been 2 months now and things are getting worse, should that be seen as a good side effect?…….I want to persevere but sometimes I also just want to give up……has anyone out there either been where I am or knows what side effects to expect and can elleviate some of my concern…….thanks Alexander


Top
 Profile  
 
 Post subject:
PostPosted: Sat Nov 06, 2010 8:42 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
When first started on abx I was feverish and delirious for two weeks but after that I experienced nothing but improvements for six months. However, I am in he minority here and most people seem to experience worsening before they start to get better. If you want to know how bad some people can feel, write to Katman. She got worse for month on month but then suddenly something clicked. She was diagnosed with PPMS but now she is a different person! Try to stick with it, its early days yet.

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Nov 06, 2010 1:38 pm 
Offline
Getting to Know You...
User avatar

Joined: Tue Dec 08, 2009 4:00 pm
Posts: 17
Thankyou Sarah for your quick and thoughtful response, it is so comforting to know you and others as caring are out there, I have written to Katman and await the response.......cheers


Top
 Profile  
 
 Post subject:
PostPosted: Sun Nov 07, 2010 3:28 pm 
Offline
Family Elder
User avatar

Joined: Thu Jan 27, 2005 4:00 pm
Posts: 1148
Location: Northern Ontario, Canada
Hi Ace,really hard to say, i am worse than when i first started but not as bad as i was without them at all. Just got to do what you think is right for you.

_________________
Had ms for over 19 years now.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 4 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Anti-biotics - what's the bigger picture

bromley

5

1721

Thu Jul 14, 2005 10:07 am

Anecdote View the latest post

There are no new unread posts for this topic. How to handle side effects of abx?

Liberation

10

888

Fri Nov 30, 2012 11:22 am

Liberation View the latest post

There are no new unread posts for this topic. Get to know the side effects-especially long term

[ Go to pageGo to page: 1, 2 ]

beatms

16

4425

Thu Sep 21, 2006 2:43 pm

mrhodes40 View the latest post

There are no new unread posts for this topic. anti- inflammatory?

[ Go to pageGo to page: 1, 2 ]

robbie

17

3415

Thu Aug 06, 2009 8:12 am

Anecdote View the latest post

There are no new unread posts for this topic. Potentially negative side-effect of Minocycline et al

bil

2

1689

Mon May 14, 2007 9:04 pm

tory2457 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: