Feel like hit with a bat

A forum for the discussion of antibiotics as a potential therapy for MS

Feel like hit with a bat

Postby kc » Wed Sep 14, 2005 8:29 am

Hi all,

I started the minocycline 5 days ago. (100mg the first day and then 50mg from then on). By day 3 I felt like my body had been hit with a baseball bat, especially between the shoulder blades. I am also very tired, but the good news is that my son is in school all day now so I can rest when needed.

I just don't get it 3 days into it and I can feel it. Does this mean my bacterial load is WAY high? I am always soo sensitive to things.

Now for the good news. One of my first ms signs was an inability to urinate. I have had to catherize myself since 1997. During the last couple of days I have been able to urinate about 3/4s of the way without a catheter!!!!!!!!!!!!!!!!!! Believe me this is big, the only time I ever had this happen was when I took Venus Fly trap (Carnivora). I stopped it though because I couldn't tolerate it.

That has given me more drive to continue.

karen
User avatar
kc
Family Elder
 
Posts: 116
Joined: Sun Jul 03, 2005 3:00 pm

Postby Katman » Wed Sep 14, 2005 1:59 pm

Karen

That IS a big thing! I certainly am not a doctor but it sounds like it has been 7 or 8 years for you. The only caution I have is be sure to do the "Flagyl thing" when it is time. That apparently is what kills the bacteria and if you leave them stored in your body they will return with the vigor of those released from the prison they were put in.

Keep reading and learning about this dragon that we are beginning to slay.

Rica
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
User avatar
Katman
Family Elder
 
Posts: 264
Joined: Mon Jul 11, 2005 3:00 pm
Location: North Carolina USA

Postby SarahLonglands » Thu Sep 15, 2005 6:54 am

Karen,
If you want to treat MS as an infection, you must do it properly. To start with, take two abx which work in synergy to avoid the build up of resistance. This means mino/doxycycline and azithromycin in the first instance. Flagyl will come later.

If you and your doctor are really unsure about things, email either my husband or Charles Stratton. It doesn't matter what country you live in. If you want to email me first, you click on the button at the bottom of this posting. I can then point you in the right direction. You seem to be sensitive to many things. I was before treatment but am now much less so, so it is worth sticking with for this, quite apart from the MS. I'm sorry, I didn't notice your postings before: I must have been too busy, so please write!

Sarah :)
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

can I check this comment?

Postby ljm » Thu Sep 15, 2005 7:07 pm

Is it correct that if you delay the flagyl there may be a re emergence of CpN which will be exacerbated (i.e. worse than before).

If yes, I'm assuming carrying on the treatment any further would be useless.

The fact is, I have been taking minocycline and zithromax but have only (as it would happen) started flagyl today. So its been 4 months since starting the regimen.

Would particularly appreciate a response from Sarah, if that is possible.
User avatar
ljm
Family Elder
 
Posts: 153
Joined: Wed Mar 30, 2005 3:00 pm

Re: can I check this comment?

Postby Daunted » Thu Sep 15, 2005 8:53 pm

What you're doing is fine!

I'm sure Sarah will chime in but I am sure I have read that Dr. Wheldon is in fact waiting for 3 or so months to introduce Flagyl these days.
On Vanderbilt Antibiotic Protocol since January
User avatar
Daunted
Family Elder
 
Posts: 271
Joined: Sun May 30, 2004 3:00 pm
Location: University Town, USA

Checked!

Postby SarahLonglands » Fri Sep 16, 2005 1:39 am

Hi Lizz,

I was tucked up in bed, fast asleep when you posted.

No, the re emergence only happens if you stop all abx without either having used flagyl or not taken the other stuff for long enough. You could feasibly eventually rid your body of CPn by never taking flagyl, but you would need to take the other abx for years and years. The minocycline and zithromax you are taking holds the CPn in stasis. It will eventually be flushed out of your system as your own body cells are replaced. This takes a long time.

Daunted is correct about David waiting a minimum of three months before starting the flagyl. He always has waited that long, he did with me, but now, with some people he judges it best to wait up to six months, so don't worry at all that you have missed the boat.

Sarah :wink:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby ljm » Fri Sep 16, 2005 9:24 am

THANKS both Daunted and Sarah. I do remember hearing something similar from you a few months ago, thats why I wasn't rushing the flagyl...but a recent post got me alarmed that I had seriously screwed up. Another question (sorry if I'm hijacking this thread) is there any speculation on why ABX does not appear as effective in PP or SP forms (speculation via research or offline via personal reports).
User avatar
ljm
Family Elder
 
Posts: 153
Joined: Wed Mar 30, 2005 3:00 pm

PP SP effectivveness

Postby Katman » Sat Sep 17, 2005 12:37 pm

Let's hear a definition of effectiveness. I have not heard that abx is not as effective for PPMS. Since I have improved SO much, and I am PP, I will have to see a comparison of the (presumably) RR and ?? people who have a much higher or even somewhat higher level of recovery than we do. Explain, please, to those of us who don't know that we are not supposed to raise our level of function beyond ______.

Rica
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
User avatar
Katman
Family Elder
 
Posts: 264
Joined: Mon Jul 11, 2005 3:00 pm
Location: North Carolina USA

Postby LifeontheIce » Sun Sep 18, 2005 4:16 pm

I have to support Katman. Sarah and I are SPMS and we are asymptomatic being once in very bad shape.
Barbara
User avatar
LifeontheIce
Family Elder
 
Posts: 113
Joined: Wed Jul 06, 2005 3:00 pm
Location: Chicago area

Postby ljm » Mon Sep 19, 2005 4:40 pm

I apologize, I thought I had read that ABX appeared not be be effective in PP, and possibly effective in early SP. Believe me, I am very happy to be corrected on this, and hope the good results will continue.
User avatar
ljm
Family Elder
 
Posts: 153
Joined: Wed Mar 30, 2005 3:00 pm


Return to Antibiotics

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service