Perhaps it is time to step up

A forum for the discussion of antibiotics as a potential therapy for MS

Perhaps it is time to step up

Postby wilson » Wed Sep 14, 2005 8:43 am

On previous posts, I mentioned that I am taking Minocycline. I started with a regiment of 100mg twice daily but cut back the dose and now only take 100mg once a day due to breathing problems while lying down at night. This past week, I decided to go back taking the antibiotic twice a day. Once again, the previous night I experienced a 10 minute time of breathing difficulty. Could this be a good sign of a CPN reaction to the antibiotic? It may be time to investigate the possibilities of an antibiotic regimen. I know people are waiting to see if more people improve just like Sarah. Perhaps it is time to explore the ABX regimen idea further?

As for me, one of the biggest obstacles is finding a physician that has an open mind and is willing to prescribe the recommended treatment. Is there a list of these doctors? Anyone have a recommendation for a doctor near me? I live in the Denver Colorado.

Thanks for your help
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Ramp up slowly!

Postby Jimk » Wed Sep 14, 2005 5:32 pm

I haven't taken minocycline myself, but Stratton noted to me that he considers it to have more tissue penetration than some other abx, and so I would expect it to be more potent as a starter than others, such as doxy or zith. All the Cpn protocols, Stratton, Wheldon, start quite slowly and ramp up carefully as the impact of endotoxin, porphyria, and cytokine reactions can be quite strong if your load is high, or the locus of the infection is neuro.

While mino supposedly is liked by MS docs because it is immunomodulatory (and so may have calming effect to the autoimmune problems as well as lower your cytokine reactions to bacterial die-off) by anecdotal reports people seem to have pretty strong reactions to it's effect.

So, go slow! Gotta breathe!
Jim
Wheldon Protocol Since Nov. 2004
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Postby SarahLonglands » Thu Sep 15, 2005 3:48 am

Wilson,

I know its over 1182 miles by road, but there is someone in Sacramento who specialises in fibromyalgia amongst other things, and is seeing quite a few MS patients. He is very nice and caring. This is his website: http://www.fmtlc.com/bio.html

I developed adult onset asthma in 1999 and had very strong reactions to a number of things from insect bites to grass pollen to the turpentine I use when painting. I wasn't bothered with at all with these things as a child. All gone now, and I am just taking booster doses of the antibiotics every two or three months. I know you are likewise bothered by similar things. Maybe it is time to take the plunge.

Sarah :)
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby wilson » Thu Sep 15, 2005 6:48 am

Thanks Sarah.

I knew I can count on you to come up with a response. I went to your posted web site and it seems that DR Powell follows the Stratton/Wheldon abx regimen. It would be nice if someone was in driving distance but at least the doctor is only a 2.5 hour plane ride away.

If you can recall, I was the gentlemen who suffers from sinusitis and was taking a corticodesteriods (Nasonex) to open up the nasal passages to help me breathe easier. I went to a ENT doc and he suggested a procedure that shrinks the turbinates in your nose. The surgury is very minor but a little messy as you can imagine.

The procedure worked great! The air passages in the nose are a lot less closed. I love to exercise and I find my endurance is longer and I can exercise more strenously when doing cardio. I would definitely recommend it to other sinusitis sufferers out there.
Perhaps I should post this procedure somewhere on this board? Wait, I just did.

God bless

Tim
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Postby SarahLonglands » Thu Sep 15, 2005 7:02 am

Tim,
Hah, yes you did! I will just add something to this, though: the CPn treatment will probably make the operation uneccessary.

I also remember that you got married earlier this year, so best wishes for your married life.

Sarah :D
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby wilson » Thu Sep 15, 2005 7:32 am

Sarah, You have an incredible memory! Married life is new to both of us. We are having a lot of fun. Some of the things we love to do together: eat and play tennis. It would be nice to think I will still be doing both ten years from now (hoping and praying :] )

I am assuming Dr P. has been in the Wheldon/Stratton/Sarah loop and has conversed with you in the past?
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Postby SarahLonglands » Thu Sep 15, 2005 8:00 am

Correct. He is a really nice person and all his patients speak highly of him. As for my memory: its pretty good. As for your tennis, I'm sure you will both be doing it in ten years time! :wink:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Daunted » Thu Sep 15, 2005 9:54 am

Tim,

I just saw Dr. Powell a few weeks ago and he's my doctor. He's a great doctor and is very familiar with all the research, he can tailor a protocol to your needs.

Any questions do feel free to PM me.
On Vanderbilt Antibiotic Protocol since January
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