How does one go about finding a doc who knows about ABX &

A forum for the discussion of antibiotics as a potential therapy for MS

How does one go about finding a doc who knows about ABX &

Postby JoyceF » Wed Feb 16, 2011 2:28 pm

I'm near Chicago and would love to find a doc that is well versed in how to treat MS with antibiotics. I'm not a fan of them but would be willing to give it a try to see if it would help.
I just wonder how MMS might not do the same thing for us as antibiotics would....
User avatar
JoyceF
Family Elder
 
Posts: 106
Joined: Thu Dec 11, 2003 4:00 pm
Location: Chicago

Postby Loriyas » Wed Feb 16, 2011 5:14 pm

Joyce
Go to www.CPn Help.org. There is an abundance of information on antibiotic therapy. Please study everything on the site to make an informed decision on whether this type of therapy is right for you. You cannot just give antibiotics a try. Antibiotic protocol requires immense committment. It is not a quick answer. A patient is on antibiotics for a long period of time. I am approaching my 3rd year on antibiotics. In addition the protocol uses a number of antibiotics and supplements. You have to be sure you are committed. I researched the heck out of the therapy before concluding that I was willing to forge ahead with it. I am glad I did. But I know a large number of people who were not fully "on board" and just dabbled with antibiotics for a short time. They soon dropped out.
Loriyas
Family Elder
 
Posts: 583
Joined: Sun Apr 02, 2006 3:00 pm
Location: Naples, FL

Hi Lori...

Postby JoyceF » Wed Feb 16, 2011 5:32 pm

Thanks so much for your reply. I did go to that site and looked around. You are so right...there is a lot of info there. Are you saying that you have done all of this on your own? I really would love to be able to go to someone who is well versed on all this. I'm not sure I could just do it myself. Besides, don't you need a doc to prescribe the ABX??
Do you think that this therapy has helped to halt any further progression? How has it helped you? Do you know where I can find someone to help me with it? Please feel free to e-mail me at wkendz32@hotmail.com as I am very interested in persuing this.
User avatar
JoyceF
Family Elder
 
Posts: 106
Joined: Thu Dec 11, 2003 4:00 pm
Location: Chicago

Postby Loriyas » Thu Feb 17, 2011 12:05 pm

Joyce
I absolutely did not do this protocol alone. I see a doctor at Vanderbilt University. I follow his plan. I take 3 different antibiotics with various dosages and timing. I will send you a personal email.

I do believe this protocol has slowed or maybe even stopped my progression.

One thing you can do on your own is to purchase N-Acetyl Cysteine at a vitamin store. See what kind of reaction you have with it and it may give you an indication of how well the antibiotic protocol will work for you. See the CPn Help.org website for dosages etc. It is over the counter so of course you don't need a prescription.
Loriyas
Family Elder
 
Posts: 583
Joined: Sun Apr 02, 2006 3:00 pm
Location: Naples, FL

I love to hear that...

Postby JoyceF » Thu Feb 17, 2011 12:41 pm

It's good news to know there is something that might work. I will certainly look into that N-Acetyl Cysteine.
I just wonder how I might find a doc around here that is familiar and onboard with this therapy. It certainly looks like something that I'd like to try. I just wonder if this is why many think that MMS should help with MS. What are the antibiotics attacking....is this a virus or a parasite? Please do e-mail me. I'd love to know how you were before you started and how things have changed for you. I'm willing to try many things so this is very encouraging. Thanks so much.
User avatar
JoyceF
Family Elder
 
Posts: 106
Joined: Thu Dec 11, 2003 4:00 pm
Location: Chicago

Postby SarahLonglands » Fri Feb 18, 2011 12:18 pm

Joyce, its a bacterial pathogen called chlamydophila pneumoniae: antibiotics will do nothing for viruses. Also if MMS is miracle mineral solution, that will do nothing for someone with MS apart from costing them a lot of money. If you are really serious about this, you could always make an appointment with Prof. Ram Sriram at Vanderbilt or email Charles Stratton at the same facility. Its not a five minute miracle cure but it has made many people here a lot better: read my signature to see how it helped me.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

NAC

Postby JoyceF » Sun Feb 20, 2011 2:42 pm

I went to the CPn Help.org site and looked around all day today. Very interesting for sure. I think that what I want to do is try the N-Acetyl Cysteine test but I could not find any information about that on the site. Do you happen to know
1. How much to take for a proper test
2. What reaction would mean that I have PCN.

I really want to thank you for all of your help. It's greatly appreciated and I'm so happy for you that you have found a solution.

I'm really interested in finding a local doc as I am no where near Vanderbilt. I'm near Chicago so there is no way that I could get to this doc and expect to continue to see him. I'm sure there must be other docs that are closer and I wonder if Charles Stratton would have an idea of wher to look for a doc that is familiar with this protocol. Do you know how I might get his e-mail addy? Again, thanks for your help.
User avatar
JoyceF
Family Elder
 
Posts: 106
Joined: Thu Dec 11, 2003 4:00 pm
Location: Chicago

Postby SarahLonglands » Mon Feb 21, 2011 8:17 am

Joyce, look here about n acetyl cysteine:
http://www.davidwheldon.co.uk/NAC.html

2000mg should work but you may need to start on a smaller dose.

You can find Charles Stratton's email here:
http://www.mc.vanderbilt.edu/root/vumc.php?site=vmcpathology&doc=14933
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Thanks you so much again Sarah

Postby JoyceF » Mon Feb 21, 2011 1:05 pm

I so appreciate all of the help you are giving me as I'm sure that this would have taken me countless hours to try and find if I would ever have found it so thanks much.
I e-mailed Charles Stratton and he very promptly responded. He unfortunately does not know of a doc in my area so please keep me in mind with that other doc. Thanks much. Joyce
User avatar
JoyceF
Family Elder
 
Posts: 106
Joined: Thu Dec 11, 2003 4:00 pm
Location: Chicago

Postby SarahLonglands » Tue Feb 22, 2011 9:22 am

Will do!!
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby SarahLonglands » Fri Apr 15, 2011 10:49 am

Joyce, I am sending you a private message with the address of someone who might be able to help you,who practises in Chicago. He is a D.O but does prescribe these abx.................Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Recommendation for Colorado Doctors open to antibiotics?

Postby reece » Fri May 06, 2011 1:16 pm

Does anyone know of any Colorado Doctors who might be either currently prescribing or willing to? I am interested in being treated with antibiotics.

Thanks
User avatar
reece
Getting to Know You...
 
Posts: 15
Joined: Sun Jan 18, 2009 4:00 pm

Postby SarahLonglands » Fri May 06, 2011 4:23 pm

Reece, ask someone at http://www.CPn Help.org: I'm British and don't know many doctors in the US.......................Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Re: How does one go about finding a doc who knows about ABX

Postby jenf » Tue Nov 13, 2012 9:18 pm

There are also a number of Lyme Literate docs who will test for CPn and treat accordingly. I started seeing one when I thought Lyme was my main culprit, only to learn it was only a small piece of my puzzle. Needless to say, they are following the Stratton/Wheldon protocols for my treatment and have been refreshingly open to allowing me to guide my treatment. Not my experience with the typical run of the mill doctor!
Jen
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
jenf
Family Elder
 
Posts: 106
Joined: Thu Sep 17, 2009 3:00 pm
Location: Albany, NY


Return to Antibiotics

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service