This Is MS Multiple Sclerosis Community: Knowledge & Support

I'll write to you to expain choices!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

I am allergic to penicillin (but not Zithromax). Will this allergy contradict any of the Abx used for the CAP?

No, except maybe amoxicillin: you had better check if you want to take that, but it isn't something you need: I never took it.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Thanks Sarah!

I'm also allergic to penicillin and reacted badly to amoxicillin. However I had no problem with any of the Wheldon and Sriram abx.

I won't comment on the abx as Sarah probably knows more than anybody.

However, I urge anybody on abx to look into the helpfulness of adding systemic enzymes. There are endless studies on how they enhance the antimicrobial activity of abx.

I'm not sure I completely understand how this works but one thing they do is to open up circulation and increase blood flow around the body including the brain, which can be an issue, i.e. ccsvi, excess fibrin etc. Increased blood flow means abx are carried deeper into the tissues, therefore hitting bacteria in hard to reach places.

My experience. I started with Serrapeptase as it was the most referenced systemic enzyme in studies. However, after a while I developed a cough. On digging deeper I learnt that it could cause inflammation in the lungs in some individuals, so I stopped that (however I was taking a dosage higher than usually recommended).
Then I tried the popular Wobenzym but it didn't seem to do anything for me.

I then learnt of Boluoke from a Lyme site. Within a month of using it, colour was back in my face. I also started to herx again. Until then abx seemed to have exhausted their power and for a long time I seemed to make no progress at all. Couple of months in I had my biggest improvement.
Currently I am on Resveratrol. It also boost blood circulation quite a lot, it helps with energy and I experience much less inflammation. I also continue pulse (due to its cost) Boluoke.

Lib, David prescribed roxithromycin for me because it gets into body tissue like no other. Here is one of the first trials done in London, for arterial disease: http://circ.ahajournals.org/content/106/25/e226.full
Azithromycin might be as good but it didn't show at the time: 1993. The main advantage that I found for roxithromycin was that it was taken every day, so I just took it at the same time as doxycycline. Also azithromycin gave me a headache the one time I tried it.

Tinidazole tends to be gentler than metronidazole so I definitely preferred that Some people prefer metronidazole because they think it is going to work better because it makes them feel worse. It definitely makes you more depressed!

hopeforA, I can't talk about digestive enzymes because the only one I was taking was the smallish amount of resveratrol in red wine!

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Thanks Sarah.
If I took azithromicin for a month or two, can I or is it advisable to switch to roxy?
If I understood correctly there is more research on roxy, so it might be preffered. As for tini and metro, are these equivalent? or because of depression issue tini is preffered, but definetely they have the same effect???

Lib, you can switch to roxithromycin whenever you like : no problem. Most people who do that find that it is preferable. I think there is more research on it, but I might be out of date. Of course the research covers different illnesses, not MS.

Tini and metro are equivalent but tini tends to make you less depressed: some people think that unless something makes you feel bad, it isn't working, but I don't think that way!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Thanks, Sarah. I just placed my order, but I had to find out that they do not accept Mastercard. Unbelivable. Most of Europe use MC.
So, what happens if I miss abx for a few weeks? Is it a problem?

Just keep up with your supplements, especially Vitamin D. If you had been sick, you wouldn't want to take abx and just sis=ck them up, so no problem.

I use a visa card: accepted everywhere!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Thanks, Sarah. I am afraid that I have to stop for a while as I am running out of supply. It is just so stupid that they do not accept Mastercard at hemaxshop. MC is the most popular card in continential Europe.

If I got flu or something similar while taking doxy and azithromicin, can I stop taking them while treating the illnes with a different abx? Also, different dose is applied when taking pneumonia or flu than in the Vanderbilt protocol.

I'll email you another place that does accept mastercard!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Thanks, Sarah. I always have concerns about ordering drugs via internet and from third world countries outside of North America or the EU. Who controls whether we get the real drugs? There are so many stories about false drugs.

Another problem that I am facing now is that my family doctor does not know what to do with my flu/cold like symptoms that I have over three weeks as I am on doxy and azithromicin. She can't prescribe an abx as I am on those two, but she can't say to stop taking those two and take a different one for my problem as she does not want to interfere with my current treatment. For flu/cold, doxy is not good as it has been commonly used in the past so it is weak, azithromicin is not good in this dose either. So, it is bad that when you have any problems like these during the Vanderbilt treatment, you can get no advice. It is just my feeling that in these small doses the abx hurt rather than help when you have flu/cold or pneumonia. So, I do not know if anything happens can we interrupt the treatment protocol for a few weeks or would i cause more problems?

Also, is it not clear for me while azithromicin is taken only three days a week (750 mg per week) (so only thre capsuls) while roxithromicin is taken every day twice (2100 mg per week). As far as I know in case of respiratory infections, both are taken every day for circa a week, so their strength should be the same.

Lib, you don't take antibiotics for a cold of 'flu because they are caused by a virus. What you are taking as the Vanderbilt treatment is the correct dose for an adult, not a small dose.

Roxithromycin is taken every day because the half life is shorter than with azithromycin. Because of this, you don't need to take azith every day, but it a cause headaches and suchlike with some people: it did with me when I tried it. Since 2003 I have not had a full blown cold: sometimes I seem like I am developing one, but nothing comes of it. You might find that this happens to you!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.