This Is MS Multiple Sclerosis Community: Knowledge & Support

Thanks, Sarah. I think the same thing might be happening to me. I feel like a cold is coming, but does not develop and is just lingering there.

I know that the abx is the right dose for the Vanderbilt protocol, but for flu like things the doctor would have given me a different one in a higher dose, but as I was taking doxy and azitromicin, she did not give me anything as she did not want to interfere. Doctors here say that whenever a virus occurs, bacterias follow, this is why they give antibiotics if there is higher temperature or if the illness is there for a long time.

For the time being I will get abx from my doctor. He prescribed them for a different indication. I will try roxy instead of azitromicin. I am just wondering if I feel different. Actually, I did not have headache even with azitromicin; however, Sriram told me that he also thinks roxy is better. He did not explain why. Is it possible to change one for the other and then get back? I heve been on abx for 4 months, so should I start tinidazole soon? Recently, my only problem is that the left side of my abdomen is sore sometimes. Whether is it caused by any of the suppliments or abx I do not know.

As I see, as for azitromicin there are 6 capsules in one box and therefore, 2 boxes are enough for one month, while as for roxy, there are 10 capsules in one box, but you need 5 boxes for one month. So, for doctors it is easier to prescribe azitromicin here as it is easier for them to explain it to the health insurance company 2 boxes rather than 5 boxes.

My only concern with internet is the reliability of the drugs, whether the state controls properly what they sell. In the EU, we have a strong legal system and we can be sure if we buy an Aspirin here that is really Aspirin and not something else. The media is full of the stories of fake Viagra and other drugs that people buy through the internet and they just get something harmful chemical stuff instead.

Anyone knows if the abx protocol can be interrupted if a different abx would be required to treat other problems by a doctor?

Does it mean anything if a not fully developped cold-like-thing is lingering around for almost a month?

As for the online pharma sites, any official control over them that would indicate they sell real stuff? It would be too bad to have that feeling that I might not be taking the real stuff if I order it from them. The FDA was just recently warning U.S. consumers that the vast majority of Internet pharmacies are fraudulent and likely are selling counterfeit drugs that could harm them. Any other option in Europe to get abx from a reliable source?

http://vitals.nbcnews.com/_news/2012/09 ... acies?lite

Lib, if you don't believe me you might try to contact Nord on CPN: nothing more to say except that you don't take antibiotics for a cold. If it isn't a cold, doxy should have cleared it up by now, unless your doc is giving you sub-standard meds.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Anyone has experience with Benebiotics?

http://www.benebiotics.com/compare-probiotics/

No.

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Liberation, Why not stockpile enough antibiotics to carry you through, before embarking on treatment? Gather enough to hold you over in case there's a delivery delay, and then start taking them. Hold back a two-week supply and pretend you do not have that 'secret' back-up plan. Order more abx BEFORE you need them, not when you are running out . This way, you'll never have to worry about not having enough.

Your doctor sounds smart. Once you are on this therapy, you should not stop and start, stop and start. If another antibiotic is really needed for some other illness, many of them can be ADDED into the Wheldon/Vanderbilt protocol. Your doctor will know if they can be taken together. And your doctor will surely tell you if it's really mandatory to discontinue taking this protocol for a short period of time, so as not to interfere with another antibiotic, if that's what your doctor must do to help you recover from something else.

Antibiotics do not help with the flu. Antibiotics do not help with ear aches. Doctors know this and should not be prescribing antibiotics when they can't be of any help, anyway. It sounds like your 'almost a cold' is just a reaction to killing off the cpn in your system. It also sounds like the reaction most people have to taking NAC, which is why we call it 'NAC flu'.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Liberation,
I'm just finishing my second month of a three month purchase of Benebiotics. I don't think they were worth the money and I've found others which are much better and cheaper. I didn't do much research before purchasing them, but I still wanted to give them a shot. Not very impressed.
Jen

Hi MacKintosh,
I am trying to stockpile; however, doctors can not prescribe as much abx as I would need. I am still getting abx from the pharmacy through prescription. I am pretty much leery about internet orders; even thouh time might come that I have to order from there. I just can not see the guarantee that their stuff is real Even last week, I just saw on TV that a huge amount of drugs were confiscated as they were fake or contained harmful stuff. Just think about the harmful children toys that came from China. So, I would be more confident with any drugs coming from legal sources from the EU or North America.

I have been taking NAC long before abx as NAC has a liver protecting function and it helped me when I took other food suppliments. That time I had no reaction to it. I read in CPN that abx has this flu like side effects. In the last few weeks I was ok, only red rushes on my face and urinary urgency, but this latter can be attributed to MS itself. Anyway, I got a urinary test and I can see the results next week. My urulogist could not see any problems. He said that we can still wait with testing my liver function.

As for the benefits, I have not seen any so far. Unfortunately, the deterioration of my walking ability and sensory problems on my body continued. This is my sixth month on therapy. I will start my third pulse of tinidazole next week.

Thanks, Jen. Any probiotics that was good for you? Currently, I am taking brands that are sold at pharmacies.

Hi Liberation,
My LLMD had placed me on several different regimens over three last few years, all recommended through the CPN.org site's protocols. I can't say if any have worked better than others, but I do know that some have been easier to tolerate than others. I think that's based on individual's tolerances. I've also found that upping my probiotic doses while on abx has turned out to be key. I've been really focusing on my diet, trying to eliminate any yeast promoting foods. I think both in conjunction have helped the abx protocol to be more effective.
Jen

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Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Doxycycline - 09/10-02/10
Flagyl: 02/10-12/10
Bicillin IM: 09/11-03/12
CHRONIC LYME - 12/10

Remember, today is the tomorrow you worried about yesterday..

Hi Liberation,
Sorry for the delay in response... I didn't realize you had asked a follow-up question about probiotics. I've had good luck with a few I've gotten though Vitacost... they are Vitacost Super 8 Acidophilus ProBiotic -- Vegetarian Capsules and Vitacost Probiotic 15-35 -- 35 billion CFU** - Vegetarian Capsules. I've also been on and off Theralac with good resukts, but it's a little pricey for me to continue on a monthly basis. My LLMD also suggests staying on Saccharomyces Boulardii for the prevention of C Dif. I get the Jarrow Formulas Saccharomyces Boulardii plus MOS -- 5 billion - Vegetarian Capsules. I take them them twice a day, though I should probably be taking them more often. Too many pills, not enough hours in the day!
Jen

p.s. - Disclaimer - I have no stock in any of these products and I'm simply recommending them based on my own personal experience.

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Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Doxycycline - 09/10-02/10
Flagyl: 02/10-12/10
Bicillin IM: 09/11-03/12
CHRONIC LYME - 12/10

Remember, today is the tomorrow you worried about yesterday..

Hi MacKintosh:

I am dx with MS in 2010 am on Rebif.
Recently I got a nasty sinus infection, which I have never had before.
I was prescribed Amoxicillin and I feel great! My MS symptoms seem to have diminished. I thought I was crazy but goggled, 'MS & Amoxicillin' and found this thread.
Do you know of any Dr. in the Chicago area that is familiar with the Antibiotic therapy for MS and perhaps would test for CPn and prescribe these antibiotics?

Anything helps!
Thankx

I hear there's more than one these days. Check your private messages.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi