This Is MS Multiple Sclerosis Community: Knowledge & Support

Hello to all who are treating themselfs with Abx's.

Can You comment if there are any benefits after you've started taking Abx's for MS treatment.

I've read a lot about Cpn and MS. I too had the NAC test and so far it looks like that i have CPN.

Please comment!!!

Just to add some info.

This morning i was tested for chlamydia p. After three ours my results were done. IgA < 1:16; IgG < 1:16. So i think they are negative and Abx treatment will not be benefical for me.

How long did it take for you to receive your results????

I am no longer on ABX's (tried and failed for me), and it was a few years ago that I tried them, so its all a distant memory, and things may have moved since then also. However, my understanding of the CPn theory precludes the ability to use any simple blood tests to identify "an infection", its more a try and see approach. Well, at least a few years ago it was. I hope someone up on the theory comes by and reads your post. You may also try sending a PM to the user "Anecdote".

Thank you very much. I think that this maybe is the answer to MS treatment. I've read a lot of everybody's posts and mostly i can find positive feedbacks.

I've sent pm to anecdote, but still no answer. Hope i will get one soon.

Regards!
Dan

Dan
I have been on the Vanderbilt antibiotic protocol for over 3 years. Please read my thread on this forum for how it has worked for me thus far.


Loriyas

Hello Loriyas,

i have read your blog before and i am happy you are doing fine. I have one question towards you. Aren't you afraid of taking abx's so much long. 3 years is a lot of time for a persons body to deal with abx's. What is your body saying about this?

My body says it would rather be on antibiotics than becoming worse with MS. As you saw in my blog I stopped all antibiotics as directed by the Vanderbilt neuro in October. Over the course of a week to 10 days I had a return of several symptoms. When I returned to the antibiotic protocol the symptoms improved. I would rather be on antibiotics forever and lead a relatively healthy life than continue to go down hill. There are no guarantees in life and there are no guarantees that either antibiotics will continue to always work or that I may develop some kind of resistance. There is also the very good chance that I won't. Believe me I thought of every scenario before I began on the antibiotic journey. I decided that I had to do something. Science has not told us definitively what causes MS and what the best way to treat it is. We each need to decide what is best for ourselves. This is what is best for me, at least at this point in time.

I am not worried about long term use of antibiotics. To me, that is a "what if" game. What I am worried about is the real possibility of declining with MS. And I refuse to allow that to happen without trying something. Antibiotics is what I have chosen to battle with.

Sorry Danir, I've only just seen your message! I'll reply to it here:

I finished treatment four years ago after taking them for a total of one year full time and three years intermittent and have had no new MS symptoms since.

I started with doxycycline, 100mg twice a day, then added roxithromycin 150mg twice a day a few weeks later, then took pulses of metronidzole for five days at a time every three weeks.

My test results were very low but not as low as yours but my response when starting treatment seemed to show that tests for chronic cpn are often ineffective. If your response to NA seems to show that you have the infection, it might be a good idea to try some doxycycline and see how you respond to that.

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Danirs,

what location are you at? There is an Australian doctor who treats CCSVI with antibiotic therapy (primarily aimed at treated chronic CPn - which can cause vasculitis).

Helen

Thank you Sarah,

i was meeting a doctor who made a x-ray of my lung. She told me that i have chronic bronchits and chronic red throat. I took 6 pills of Azitrox(Azitromicin). She told me that i do not need to take doxy, because azitro is a new macrolid abx, that is used to kill Cpn.

Please let me know what do you think


PS: In a while i am having this temperature of 37 37,1 which is bad. This is everyday

Hello Hellen,

i am far away from australia

But thanks anyway.

Hi, everyone - I haven't been on this site in awhile, but thought I'd respond to the question for any newbies who happen by. I started antibiotic therapy less than two months after being diagnosed with 'probable MS'. I'd lost 70% of the vision in my left eye, was tripping over nothing, couldn't grasp a glass in my left hand, had foot drag and extraordinary fatigue, extreme gallbladder pain, difficulty swallowing (I couldn't remember 'how' to swallow a few times), and severe short-term memory loss.

Within ten days of starting abx, the short term memory issues began to abate, the swallowing issue disappeared and the foot drag minimized. My vision came back 100%, with only a tiny depth perception issue left to deal with. My several times a year chronic lung infections are gone, permanently, as are my sinus infections. I have energy levels I haven't seen since childhood. (Oh, and the gallbladder, which was scheduled for surgical removal, functions perfectly now.)

In short, I was rapidly declining over a few short months prior to antibiotics. I'm at about 98% now of where I'd like my health to be. I'm a huge believer in the theory of cpn bacteria causing MANY so-called autoimmune diseases. It makes way more sense than the idea that, one day, my body suddenly decided to start chewing on its own myelin for no reason.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hello everyone,
I am just wondering if there might be someone who can help me. I read a few comments here on the link between CPn and MS that I really found very interesting. It seems to me that many illneses come down to genetics and some viral or bacterial infections. Even many types of the cancer are caused by viral infections. For some reason, I would not be surprised if the trigger for MS would be a virus or bacteria.

About twenty years ago I had a serious pneumonia whose origin was never found. Unfortunatelly, later I got pneumonia again. So, I am just really wondering if CPn might be part of the story.

Is there anyone who can tell me what are the results of abx treatment for MS or if there is anyone who has personal experience with it? How can I get tested? If I have CPn, what would be the exact procedure that I should follow? I live in the eastern part of Europe, so I am just wondering how I can find a doctor who would go with this.

I would really appreciate any help and inof on the subject.

Well, my results were pretty much immediate (within ten days my brain fog improved and a serious gallbladder issue resolved itself). My recovery is in the 95 to 98% range, I'd say.

I used to have major pneumonia bouts at least twice a year, plus constant sinus re-infections. All of that is gone now, as is my foot drop, slurring of speech, trips and falls, brain fog, tingling or numb feet, optic neuritis, low body temperature...

You'd do best to visit CPn Help.org (which this website changes in its formatting). If the link doesn't work, google chlamydia pneumoniae antibiotics treatment and you should find it.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

For me as well, the results were pretty much immediate, as you can see if you search here or at CPn Help, where I am known as simply Sarah. Also my tale can be found here, on my husband's site: http://www.davidwheldon.co.uk or here, on the page I have removed from my site because my site is about my work, not my previous illness: http://www.avenues-of-sight.com/Sarahlonglands-MSpages.html It is still lurking around in the ether, though and many people still seem to find it.

I have never had pneumonia to my knowledge and my Cpn reading was only 1:64 but after having had MS for nearly twenty years I did suddenly became very ill with the wretched disease and the mere fact of walking across the dining room from the kitchen became well nigh impossible but after just a couple of weeks of doxycycline, the brain fog had gone and I had regained the voice which led my husband to my place of work in the first place!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.