Hello Northcircular, if you have seen Jen's post on CPn Help, I have just looked up water kefir grains and you can get them through Amazon reasonably quickly. I guess you will have to use just live yoghurt to start with. By "those little bottles in the supermarket" I presume you mean DANONE and that German sounding name which makes a delicious raspberry probiotic drink. They aren't rubbish but kefir and unadulterated lie yoghurt are probably better.
As for supplements, the best are obtainable from either Iherb or Vitacost in the US. The best way to do it is to do a big order to start off and be willing to pay import duty, which is just the same as paying VAT for stuff bought locally. Then, if you are wiling to wait a few weeks, buy things from the to be sent surface mail and keep the cot below £50, then you won't have to pay duty.
You say "Why are neurologists prepared to let people die rather than suggest 'fringe' treatments?" I wonder that myself: my neurologist worked just across the courtyard from David, but did he ever send people to him? Did he ever! Plus he charged me a lot of money for telling me that there was nothing that could be done and that my professional life was over. So now, every year he gets a Christmas card with one of my latest pictures on the front.
As for people who have not been helped by this treatment, there are some and by and large they just stop posting, just like some people who have got completely better or the people very early in their disease who were helped by campath or the people who have gained some sort of vague or temporary relief from ccsvi treatment.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.