Wiggy, I'm glad you brought up the steroids. I had one course of IV and then pills to taper off from it. My opinion was it didn't help and it actually seemed to enhance the symptoms. Over on CPn Help, somebody, but I don't recall who, mentioned that steroids actually help feed the cpn infection. That would certainly account for what I went through. By the time I left the hospital after the two days of IV steroids, I had intermittent numbness in toes and fingers, a very sensitive nerve ending in the upper front (like the 'front' of the ankle) that shot sensations down to my various toes, total lethargy.... not good. I'm not a fan of steroids and I really have no use for them now, after going through that exercise in futility.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi