This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 10:42 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 4 posts ] 
Author Message
PostPosted: Tue Sep 25, 2012 7:57 pm 
Offline
Newbie
User avatar

Joined: Thu Jan 20, 2011 4:00 pm
Posts: 7
Hi,

I am a 28 year old male. I have had MS the last three years. My neurologist and I are inclined to think it is PPMS due to continued progression. My symptoms are horrible brain fog (cognitive decline), weakness in limbs(especially arms), spasticity, difficulty using my right hand. I would like to start an antibiotic protocol. As you can imagine, I am excited but also confused due to all the literature. I have a few questions.

1. Is the Wheldon protocol the best to start with. Are there competing protocols?

2. I am in central California and don't think I can find a doctor who specializes in this area. Is it alright to administer the protocol myself provided I do it religiously? I'm thinking I can probably find a general practicioner to prescribe the antibiotics.

3. I don't remember having a recurring chest infection as described in the slideshow created by David Wheldon. Are there atypical cases where the genesis of the infection might not be so obvious?

4. Is it ok to start Doxycycline and azithromycin at the same time at the full dose, rather than waiting a few weeks on the azithromyocine?

5. Is there a preference between roxithromycin, azithromycin, or rifampicin? They all seem to be interchangeable according to the protocol?

6. Beside NAC, which I understand the importance of, are all the other supplements absolutely necessary?



Thank you so much ahead of time

P.S. I posted these questions at CPn Help.org also, I just thought there might be more members here


Top
 Profile  
 
PostPosted: Thu Sep 27, 2012 10:29 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
Hello asmitty,

Here are my answers:

1. What you call the Wheldon protocol is really just a version of the Vanderbilt protocol.

2. I know from CPN that you can't get to see Mike Powell at the moment but really there is so much information on both ThisisMS and CPN that you can easily treat yourself. Even if you can't find a doctor who is wiling to prescribe for you, there are places you can purchase antibiotics online and I know where this can be done safely: you only have to ask! Many people do it this way because so many doctors have fallen into the trap of thinking that taking abx for a long period is bad for you and not thinking that for certain diseases it is the only way to eradicate the disease. Tuberculosis, for instance, won't be got rid of by taking three months of antibiotics and neither will chlamydophila pneumoniae, which some family doctors haven't even heard of yet.

3. I didn't either, well, until a few years after developing MS, that is.

4. Yes, if you think you can stand it. I think most people could.

Roxithromycin is not available in the US and rifampicin is not easy to start off with: it really should only be taken with a doctor to oversea you because of the possibility of liver damage.

Vitamin D3 is necessary because people with MS often have very low levels of it. All the B vitamins are beneficial to the brain, especially methylated B12. Anything that works as an antioxidant is also beneficial, including vitamin C. If you are taking any abx, probiotics are also needed, taken two hours apart from the antibiotics.

There are now many more abx members at CPN than here, which is a pity because ThisisMS people probably think that antibiotics are a lost cause: yet one more 'miracle cure' that just doesn't work.

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
PostPosted: Thu Sep 27, 2012 4:30 pm 
Offline
Newbie
User avatar

Joined: Thu Jan 20, 2011 4:00 pm
Posts: 7
Thank you very much Sarah. I'll continue posting on CPN help from now on.


Top
 Profile  
 
PostPosted: Fri Sep 28, 2012 8:16 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
See you there!!

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 4 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Flagyl pulse, Day 10 - Antibiotic Protocol Day 886

[ Go to pageGo to page: 1 ... 4, 5, 6 ]

MacKintosh

78

12490

Thu Aug 07, 2008 6:47 am

notasperfectasyou View the latest post

There are no new unread posts for this topic. Combined Antibiotic Protocol for MS - Begin Here

notasperfectasyou

9

4952

Wed Jan 23, 2013 10:21 pm

Ruthless67 View the latest post

There are no new unread posts for this topic. Started Wheldon CAP

[ Go to pageGo to page: 1, 2, 3 ]

mormiles

35

7100

Sun Dec 09, 2012 11:43 am

Anecdote View the latest post

There are no new unread posts for this topic. Antibiotic?

Outlawbiker

2

1506

Sun Feb 27, 2005 2:52 pm

Outlawbiker View the latest post

There are no new unread posts for this topic. new member - just started metronidazole- feel very ill

shilston

7

634

Sun Jan 06, 2013 9:20 pm

shilston View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: