This Is MS Multiple Sclerosis Community: Knowledge & Support

Following Arron topic idea I would like to know the same for those patients who have followed or are currently following Dr Wheldon's protocol (Doxycycline, Azithromycin (or Roxithromycin) and Metronidazole on http://www.davidwheldon.co.uk/ms-treatment1.html)

How long have you been following the protocol?
Are you better, same, or worse than when you started?

You might find more people responding if you ask thequestion at http://www.CPn Help.org becase more people look there on a regular basis. This ink won't work, unlike any link back from CPn Help to here which will,but if you decipher this link you can do it manually: www(DOT)cpn(no space)help(DOT)org

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Sarah, I'm not sure what you're talking about, because every single one of the links you've posted around the forum today take you right to the CPn Help site, and I clicked on this one right after you posted it.

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

Euphoniaa, now it is me who doesn't understand what you are talking about, because if I put a live link on, it would not work, so I don't: I put something like www(DOT)cpn(BLANK)help(DOT)org then people can change it to a live link.

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Sarah, there IS a live link in your post above, as well as the (DOT) one. And there are live links in the other posts you made.

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

Euphoniaa, there isn't: it just leads to a blank page, both on Firefox and IE. At least the link to David's site works.

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Wow, maybe the board just likes me better! Every single one of your links to http://www.CPn Help.org takes me straight to the site. It's a mystery...

Edited to add that the one I just now typed takes me there, too. What are your "board settings"?

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

No board setting except my usual works at all, so someone must like you better!

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Just to confirm that the links don't work for me either. How strange, that they don't seem to work for any of us who also post to CPn Help. Odd, that.

There is a space between "cpn" and "help". It should be www.CPn Help.org
See if that works.

Auto check changes it. http://www.CPn Help.org

It did it again. There should be no caps and no spaces. Why is it changed when it is a post but if I go to edit to correct it shows the way I typed it in? In order to go to the site you will have to type in address. No links posted on TIMS works for me either.

On-topic. Started Wheldon/Vanderbilt antibiotic protocol 06 October 2006. Now on intermttent treatment. My recovery from a rapid decline and numerous, ever-blossoming symptoms, is about 95-98%. My one unrecovered deficit is a small depth perception issue left over from an optic neuritis attack in 2005. And I have a small, palm-sized numb spot on my right thigh.
I have a real life for the first time in my adult life, and more energy than I have ever had previously.

Off-topic. None of the links work for me.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I've been on the protocol since 2010. Two years into treatment and I'm doing well. No vast improvements, but no declines either. I have leveled and am treating my gut in order to leave no stone unturned. A recent MRI did show a new lesion, but I had also stopped abx for a few months to give my stomach a rest (mistake, I know). My conventional Neuro advised me last week to keep doing whatever I was doing because its working. How ironic is that?
Jen

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Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Doxycycline - 09/10-02/10
Flagyl: 02/10-12/10
Bicillin IM: 09/11-03/12
CHRONIC LYME - 12/10

Remember, today is the tomorrow you worried about yesterday..

You don’t need to give your stomach a rest if you are taking proper probiotics: just keep taking the abx until you get no more reactions. I did and have had nothing new MS wise since I finished in 2008.

Of course, you must remember to take the probiotics at least two hours apart from the antibiotics so better luck in the future!
Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.