CPn test

A forum for the discussion of antibiotics as a potential therapy for MS

CPn test

Postby somebodyx » Tue Nov 13, 2012 3:33 pm

Hello,
could someone please tell me how can one get tested for CPn in Slovenia? I am also interested in antibiotics treatment if possible in Slovenia. Does anyone have any experiences with doctors in my country being pro antibiotic treatment for MS?
Thank you for answers.
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Re: CPn test

Postby SarahLonglands » Wed Nov 21, 2012 9:28 am

I'm not sure about Slovenia but if you look at this site: www(dot)cpn(nospace)help(dot)org you will find severalpeople from eastern European countries(Slovakia, Hungary, Bulgaria, Romania) who might be able to help.

Best of luck,

Sarah :smile:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: CPn test

Postby Liberation » Wed Nov 21, 2012 2:08 pm

Anecdote wrote:I'm not sure about Slovenia but if you look at this site: www(dot)cpn(nospace)help(dot)org you will find severalpeople from eastern European countries(Slovakia, Hungary, Bulgaria, Romania) who might be able to help.

Best of luck,

Sarah :smile:


Hi Sarah,
isn't CPn test useless as an indication of the cause of MS?
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Re: CPn test

Postby SarahLonglands » Thu Nov 22, 2012 6:49 am

Some people say so. Actually a positive result obviousy does not show that you have MS, but a positive result for someone with MS indicates one of the reasons why they have the disease. Many people start treatment without being tested. I did: I was tested a few weeks later.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: CPn test

Postby Liberation » Fri Nov 23, 2012 9:20 am

Anecdote wrote:Some people say so. Actually a positive result obviousy does not show that you have MS, but a positive result for someone with MS indicates one of the reasons why they have the disease. Many people start treatment without being tested. I did: I was tested a few weeks later.

Sarah


Sorry, this is not what I wanted to say. I might have misunderstood it. My understanding was that CPn test is from blood, but if you have MS, CPn is already in your other cells, so blood test has no relevance in case of MS. My test was negative, but it was done two months after the start of the Wheldon protocol.
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Re: CPn test

Postby SarahLonglands » Sat Nov 24, 2012 11:11 am

Yes, you are right there: my C pn test was two weeks after starting, when the mixture or infection and dead cells tends to make the reading higher, but mine was only 1:64, not high enough to be bothered with treating according to my GP. Two months on and I might well have regulated and so shown negative like you.
Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: CPn test

Postby KHL » Tue Nov 27, 2012 7:49 am

Sarah, does David take new patients?
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Re: CPn test

Postby SarahLonglands » Tue Nov 27, 2012 11:58 am

Karen, I will send you a PM.
Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: CPn test

Postby KHL » Fri Nov 30, 2012 7:37 am

Thank you Sarah
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Re: CPn test

Postby KHL » Fri Nov 30, 2012 10:24 am

Just had a conversation with my GP and he says although he wont prescribe he is willing to refer me to someone who know more than he does! HELP!
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Re: CPn test

Postby Liberation » Fri Nov 30, 2012 11:46 am

Anecdote wrote:Yes, you are right there: my C pn test was two weeks after starting, when the mixture or infection and dead cells tends to make the reading higher, but mine was only 1:64, not high enough to be bothered with treating according to my GP. Two months on and I might well have regulated and so shown negative like you.
Sarah


Sarah, I might be confused about testing CPn, even though Sriram recommended the test as well. If someone took antibiotics for different reasons in the past. Can he still have a positive CPn test from his blood? Wouldn't it be more likely that CPn is already in other cells of his body and cleared out from his blood?
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