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 Post subject: CPn test
PostPosted: Tue Nov 13, 2012 3:33 pm 
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Joined: Tue Nov 13, 2012 8:13 am
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Hello,
could someone please tell me how can one get tested for CPn in Slovenia? I am also interested in antibiotics treatment if possible in Slovenia. Does anyone have any experiences with doctors in my country being pro antibiotic treatment for MS?
Thank you for answers.


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 Post subject: Re: CPn test
PostPosted: Wed Nov 21, 2012 9:28 am 
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Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2013
Location: Bedfordshire UK
I'm not sure about Slovenia but if you look at this site: www(dot)cpn(nospace)help(dot)org you will find severalpeople from eastern European countries(Slovakia, Hungary, Bulgaria, Romania) who might be able to help.

Best of luck,

Sarah :smile:

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


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 Post subject: Re: CPn test
PostPosted: Wed Nov 21, 2012 2:08 pm 
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Joined: Fri Jan 07, 2011 4:00 pm
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Anecdote wrote:
I'm not sure about Slovenia but if you look at this site: www(dot)cpn(nospace)help(dot)org you will find severalpeople from eastern European countries(Slovakia, Hungary, Bulgaria, Romania) who might be able to help.

Best of luck,

Sarah :smile:


Hi Sarah,
isn't CPn test useless as an indication of the cause of MS?


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 Post subject: Re: CPn test
PostPosted: Thu Nov 22, 2012 6:49 am 
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Joined: Thu Jun 17, 2004 3:00 pm
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Location: Bedfordshire UK
Some people say so. Actually a positive result obviousy does not show that you have MS, but a positive result for someone with MS indicates one of the reasons why they have the disease. Many people start treatment without being tested. I did: I was tested a few weeks later.

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


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 Post subject: Re: CPn test
PostPosted: Fri Nov 23, 2012 9:20 am 
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Anecdote wrote:
Some people say so. Actually a positive result obviousy does not show that you have MS, but a positive result for someone with MS indicates one of the reasons why they have the disease. Many people start treatment without being tested. I did: I was tested a few weeks later.

Sarah


Sorry, this is not what I wanted to say. I might have misunderstood it. My understanding was that CPn test is from blood, but if you have MS, CPn is already in your other cells, so blood test has no relevance in case of MS. My test was negative, but it was done two months after the start of the Wheldon protocol.


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 Post subject: Re: CPn test
PostPosted: Sat Nov 24, 2012 11:11 am 
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Joined: Thu Jun 17, 2004 3:00 pm
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Location: Bedfordshire UK
Yes, you are right there: my C pn test was two weeks after starting, when the mixture or infection and dead cells tends to make the reading higher, but mine was only 1:64, not high enough to be bothered with treating according to my GP. Two months on and I might well have regulated and so shown negative like you.
Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


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 Post subject: Re: CPn test
PostPosted: Tue Nov 27, 2012 7:49 am 
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Getting to Know You...

Joined: Tue Jan 10, 2012 11:00 am
Posts: 11
Sarah, does David take new patients?
Karen


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 Post subject: Re: CPn test
PostPosted: Tue Nov 27, 2012 11:58 am 
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Joined: Thu Jun 17, 2004 3:00 pm
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Location: Bedfordshire UK
Karen, I will send you a PM.
Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


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 Post subject: Re: CPn test
PostPosted: Fri Nov 30, 2012 7:37 am 
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Getting to Know You...

Joined: Tue Jan 10, 2012 11:00 am
Posts: 11
Thank you Sarah
Karen


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 Post subject: Re: CPn test
PostPosted: Fri Nov 30, 2012 10:24 am 
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Getting to Know You...

Joined: Tue Jan 10, 2012 11:00 am
Posts: 11
Just had a conversation with my GP and he says although he wont prescribe he is willing to refer me to someone who know more than he does! HELP!
Karen


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 Post subject: Re: CPn test
PostPosted: Fri Nov 30, 2012 11:46 am 
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Joined: Fri Jan 07, 2011 4:00 pm
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Anecdote wrote:
Yes, you are right there: my C pn test was two weeks after starting, when the mixture or infection and dead cells tends to make the reading higher, but mine was only 1:64, not high enough to be bothered with treating according to my GP. Two months on and I might well have regulated and so shown negative like you.
Sarah


Sarah, I might be confused about testing CPn, even though Sriram recommended the test as well. If someone took antibiotics for different reasons in the past. Can he still have a positive CPn test from his blood? Wouldn't it be more likely that CPn is already in other cells of his body and cleared out from his blood?


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