How to handle side effects of abx?

A forum for the discussion of antibiotics as a potential therapy for MS

How to handle side effects of abx?

Postby Liberation » Sun Nov 18, 2012 5:30 am

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Re: How to handle side effects of abx?

Postby SarahLonglands » Sun Nov 18, 2012 12:20 pm

Hi Lib, by and large, these side effects are not experienced by most people to any great extent. I managed doxycycline and roxithromycin easily: well. I sicked my doxycycline up once when I took it and straight away jumped into the shower without eating.


Metronidazole most people find disgusting: the metallic taste lingers and lingers. Tinidazole is slightly better. Both can make you feel depressed, which is why they are pulsed.


Oh, and rifampicin has little imunomodulation: when I changed to it for six months at first it made me want to walk in circles rather than a straight line, but I did get used to it.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: How to handle side effects of abx?

Postby Liberation » Fri Nov 23, 2012 10:08 am

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Re: How to handle side effects of abx?

Postby SarahLonglands » Sat Nov 24, 2012 11:59 am

Lib, where can I find this WHO information about 8000 people a year dying from taking antibiotics? In the UK people with meningococcal and other septicaemias often will die because they have to be given enormous IV doses very quickly to stop the death which would otherwise ensue.

Maybe you troubles are due to long term use of antibiotics and you should take your doctor’s advice, but maybe they are due to something else. I didn’t think you had been taking the stuff for that long. One thing is for certain, though, antibiotic use does not cause colds or other infections!

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: How to handle side effects of abx?

Postby Liberation » Sun Nov 25, 2012 6:22 am

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Re: How to handle side effects of abx?

Postby Hebron » Wed Nov 28, 2012 1:56 pm

Anecdote wrote:Lib, where can I find this WHO information about 8000 people a year dying from taking antibiotics? In the UK people with meningococcal and other septicaemias often will die because they have to be given enormous IV doses very quickly to stop the death which would otherwise ensue.

Maybe you troubles are due to long term use of antibiotics and you should take your doctor’s advice, but maybe they are due to something else. I didn’t think you had been taking the stuff for that long. One thing is for certain, though, antibiotic use does not cause colds or other infections!

Sarah


This does not sound good. :( I am new here and wondering what I can expect if I start the abx. My family doctor already told me that taking abx for more than a few months can cause problems. Now, when I am reading these lines it seems to me that these problems are not addressed yet.

So, if I meet any problems with abx, I can rely on only my judgement, even though I am not a doctor. For God's sake, we are talking about a prescription drug. :(

Aren't any doctor familiar with this abx protocol in this forum??? At least, in CCSVI forum people can ask them and consult with them.
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Re: How to handle side effects of abx?

Postby Liberation » Thu Nov 29, 2012 2:14 am

Anecdote wrote:

Maybe you troubles are due to long term use of antibiotics and you should take your doctor’s advice, but maybe they are due to something else. I didn’t think you had been taking the stuff for that long. One thing is for certain, though, antibiotic use does not cause colds or other infections!

Sarah


Hi Sarah,
regardless of what is causing the problem or the infection, how can they do a lab test if I am on abx? This is why they usually take you off the abx for 10 days before blood or urinary test.

Sorry, but even the CPn Help handbook says that viruses surface during CAP treatment as latent but surpressed viruses and fungi emerge as immune response lowered. To me it seems logical that you might be more susceptable to cold or flu if your immune system is down. CPn Help handook also says that inflammation and bowel problems are part of the process.

So, my question would be how can I get any of these problems checked out with a doctor? What can he do?
I know that many of the side effects indicated in the leaflet are rare, but let's face it MS is also a rare illness, but we have it.
By the way, my urine test showed bacterial infection two weeks ago, even though I have been on abx for almost 6 months.

I would be really glad if I could find a way for my problems as I would like to continue the Wheldon protocol. I planned to do 1 year to see if any result. Any experience in such cases of your husband?
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Re: How to handle side effects of abx?

Postby SarahLonglands » Thu Nov 29, 2012 10:26 am

Lib, I can’t tal about David’s patients, it would be unethical unless they talk about themselves, which I am doing about me and I had no problems. I must add that I never had the noral childhood viruses so maybe there was nothing to re-emerge but these latent viruses sink back as your immune system becomes tougher with the treatment. My immune system reallyhas become stronger and quite quickly because firstly I haven’t had a cold since 2003 and also I used to be very allergic to nsect bites, especially mosquito bites. I think they like the smell of my blood because they still bite me as much but with hardly any reaction.

To Hebron and Gogo and anyone else: there are no antibiotic doctors writing here because they are too busy: the ccsvi doctors who write here just test the patients then send them on for operations if needed. I do have a small list of papers so if you send me your email addresses I will forward them.
Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: How to handle side effects of abx?

Postby NHE » Thu Nov 29, 2012 3:17 pm

Anecdote wrote:the ccsvi doctors who write here just test the patients then send them on for operations if needed.


This is incorrect. Dr. Sclafani most certainly does treat patients.
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Re: How to handle side effects of abx?

Postby SarahLonglands » Fri Nov 30, 2012 3:49 am

My mistake, sorry!
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: How to handle side effects of abx?

Postby Liberation » Fri Nov 30, 2012 11:22 am

Anecdote wrote:Lib, I can’t tal about David’s patients, it would be unethical unless they talk about themselves, which I am doing about me and I had no problems. I must add that I never had the noral childhood viruses so maybe there was nothing to re-emerge but these latent viruses sink back as your immune system becomes tougher with the treatment. My immune system reallyhas become stronger and quite quickly because firstly I haven’t had a cold since 2003 and also I used to be very allergic to nsect bites, especially mosquito bites. I think they like the smell of my blood because they still bite me as much but with hardly any reaction.

To Hebron and Gogo and anyone else: there are no antibiotic doctors writing here because they are too busy: the ccsvi doctors who write here just test the patients then send them on for operations if needed. I do have a small list of papers so if you send me your email addresses I will forward them.
Sarah


Sarah,
I greatly appreciate your help that you have provided so far here in tims and private. It is always good to hear about others' experiences. It gives hope and encouragement. However, as it seems Wheldon protocol is worked out well and it is quite straight forward, to me the most important thing where more help would be needed is how to handle the potential side effects, which might be not serious, but as many of us are not medical doctors we can not know whether it is or not when it happens. I am not sure how representative this forum is with regard to side effects, but I have a guess.

Both legally and ethically, you do not break any confidentiality when you speak about things in general and describe patients groups, not an individual (of course, if your husband makes it public) Knowing more about side effects occuring in a greater patient population would help people here what to check up with their own doctors if something occurs.

One question: My fourt pulse of tinidazole is due circa after 10 days. I leave out two weeks between pulses as it was suggested in the protocol. I am just wondering if it causes any problems if I postpone the next pulse by a week?? I will be abroad that time and I am just afraid that would be too much to bear.

Thanks,
Lib
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