I thought it was a good time to introduce myself here. I am from NZ and have had PPMS for over 8 years now and I have managed to stay relatively mobile. Because of my Life History I tend to go searching for understanding of things that impact me and I have looked at most things MS.
I travelled to Australia last August and met with Dr Paul Thibault and his Sonographer after talking online with him for about 18 months earlier.
I had Vascular Testing on the Neck veins accessible by Colour Doppler and Warren found some flow issues mostly related to azygos and VV's. I also had CPn blood testing in both Australia with Paul's chosen people and in NZ with one of the better labs, both sources came back positive with a persistent chronic CPn infection.
So with Dr Thibaults help I established contact with a Specialist in NZ who will work with Dr Thibault and is able to prescribe the Wheldon Protocol or the NZ version due to Drug availability and subscription subsidies.
I began the Protocol mid Sept 2012 and I am about to have the 3rd Pulse in 3 days. The whole time on the Protocol I have had what I call a positive symptom reaction which is actually a negative in disability really.
The Protocol has had effects on all my 'MS' symptoms with some minor improvements and mostly an increase and also fluctuation of the symptoms. I have found that many of my symptoms relate to injuries over my life time and they date back to my late teens. The increase or progression in these symptoms since I began the Protocol has me convinced that the protocol is targeting the 'problem' or core of my disability which does not allow me to work. I believe there is a core and then co-factors which have developed into the pigeon hole of 'MS'.
Dr Peter Chapman-Smith is the NZ Specialist we use and he does Skype consultations for the protocol which is such a huge benefit for the others who have now begun on the Protocol. Dr C-P is also involved in Stem Cell trials in NZ that are linked to an International Research Program. So positives all round.
Dr Thibault is also doing a trial on the CPn treatment he administers in Australia and the plan is to link NZers into that. I personally am in Dr Thibault's trial. The results will be some time away, so there is a positive future ahead.
Sarah, hope you are continuing the improvement!
I have sent an email to an address I believe Dr Wheldon uses to explain this as well as sending some thoughts and links. Dr Thibault and Dr Chapman-Smith are also in the communication link so hopefully we can generate some dialogue to further the findings regarding CPn and other bacterial involvement in any degenerative disease.
I spend allot of time communicating with others Internationally to increase my knowledge of co-factors in these diseases and have a fb site that covers many new insights at https://www.facebook.com/pages/CCSVI-in ... 1636357984
Sarah, thank you for your huge input and dedication to helping others