CuriousRobot wrote:Gogo, please stop commenting on research that you have not read or understood; all you are accomplishing is the spread of misinformation. Also, in regards to Woessner, 18 weeks out of a 52-week year is hardly "long-term." Zhang and Metz studied a group of about 10 patients on minocycline for 36 months, continuous, daily administration, with positive effects on Gd+ lesions on MR studies.
Curious, you should please stop stopping others asking in this forum.
As far as I know abx treatment is not an FDA approved treatment for MS, so let me and others have the right to ask about it. Are you a medical doctor?
If you have info on the abx other than the ones in CPN handbook, why do not you share it with us instead of calling names all the time when someones asks a questions about it. Please excuse me that I am not well versed in abx treatment of MS but none of the doctors whom I contacted could tell me anything about it even though they have a wide range of experience either with abx or MS. I am not a medical doctor either.
Yes, I know the published treatment was not a continuos daily administration of abx, but I would assume that those scientists also had a hypothesis. If you know so much about abx treatment of MS, then why do not help us and answring our questions? You always refers to CPN handbook, but that book does not contain many important things and makes lots of mistakes about the role of autoimmunity, etc.
Instead of bashing others why just don't tell us when a connection exists between sy's MS and Cpn? I know the NAC test, but even without NAC I have sometimesrunning nose and mucus, etc. My blood test showed no detection of Cpn.
Also how should someone do the administration of abx in the long run if for example she has some side effects, like stomach ache, infection, etc.? All the doctors whom I talked to were afraid of doing such a long, daily administration of abx. Even when they treat sy with abx for years they do it in cycles with pauses of couple of weeks. The doctor who treats lyme patients said that the administration of abx takes only a few months for lyme patients.
I understand that the protocol was developped in a way that no resistance can hopefully occur, but you are still taking chemicals for at least a year that can damage organs just like any drugs. So, why is it such a bad thing that someone tries to be prudent and collect info before starting such treatment?
I do not dispute that abx helped some people, but basing a long term treatment with any drug on anecdotes written on the net by people hiding behing nicknames is all but not wise.
It is good to have the Cpn book, but you and those who organized that book should understand that those patients and doctors whose native language is not English will get lost in it and might miss important things that can even hurt the patient doing the treatment.