I just started the Dr David Wheldon course of treatment!!!
27th March 2013
I was diagnosed with MS in 1991.
I am lucky, it has been a slow decline and the most obvious physical effect is that my right leg does not work very well.
I cannot run and after one kilometre my leg gives up. There is always a pronounced limp which gets worse as I go on until the leg gives out completely.
I believe this is mainly due a rise in core body temperature. The colder it is, the better and longer I walk.
Yes... I know, I am very lucky that I can make it that far.
I do not drink or smoke and I exercise each day. I take supplements and try to avoid physical and emotional stress.
So it is not entirely luck ....
My brain is always in a fog. At times it is like someone opens the top of my skull, slips in a hand grenade, hold the top of the skull down and lets the hand grenade explode.
I tell people I have a brain like a computer .... unfortunately is is all RAM (Random Access Memory)
Complex planning ranges from a chore to an impossibility.
As we all know, heat is a disaster.
My whole right side has paraesthesia. This happened after a bout of extreme stress the first time. I managed to make it much worse at the beginning of 2012 when my wife left me. Extreme stress is best avoided it seems.
I get tired easily ... something we all recognize, but something the people on the outside find it hard to comprehend - "I get tired too .... what's wrong with you ...." (not a question, a statement)
I have been pushed further and further into a smaller and smaller world. It was one of the reasons my wife left me, I am sure.
My body is like a mad woman's breakfast with lights going on and off all the time.
I wake up feeling very heavy, like I have been hit by a truck.
So when I first saw the ABC Catalyst programme I was very excited.
The first two doctors I saw simply dismissed it and indicated that us cripples should know our place.
Today, back in my home near Hobart and back with my long term GP (I had been away for the last 6 months having a quiet nervous breakdown and being cared for by my son), I trepidatiously took in the information expecting another re-buff. He said, "what a good idea, can't do any harm, I will be interested to see what happens."
So I have started today!!!!!
I started this thread because I will give a running commentary on how it goes.
I was greatly encouraged by the other threads which talk of success.
After 20 years with my head firmly in the sand, I am finally reaching out and acknowledging my condition.
For that alone, thank you Dr David Wheldon