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PostPosted: Sat May 18, 2013 7:50 am 
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Reading the CPn website there are only a few MS patient stories following the Wheldon protocol, and few that comment on mobility improvements, balance and/or legs strength.

So i wanted to know if anyone following the Wheldon antibiotic protocol has seen improvements in their walking/balance since starting the protocol? if so, how long did it take from starting the protocol was it till you saw mobility function improvements?
which abx did/do you/they take?
have they continued to improve?

or even if anyone has heard/read of someone else having mobility improvements from abx?

As taking abx is a risky decision, i dont want to start the protocol if there is no hope of me regaining mobility

i currently have an EDSS of 6


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PostPosted: Sat May 18, 2013 12:25 pm 
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Hi Adam
Yes, I did the Wheldon protocol for RRMS and my walking and balance have improved substantially. I was never bad enough to need a mobility aid but I experienced frequent foot drag and a feeling that my legs were so heavy it was hard to walk. I also had trouble going down stairs both because of leg strength and balance. Since the treatment these symptoms (and some others) are all gone - I am very very grateful to Dr Wheldon.

I would thoroughly recommend trying the abx although of course the treatment is not easy in the early stages because of the herx reactions.

Good luck with your journey.


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PostPosted: Sat May 18, 2013 1:55 pm 
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Yes - I'm back to wearing high heels and dancing around with no difficulty. Considering I was about to sell my manual-shift car because I could no longer coordinate my movements, I'd say I had 100% improvement on that issue.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi


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PostPosted: Sun May 19, 2013 1:30 am 
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MacKintosh wrote:
Yes - I'm back to wearing high heels and dancing around with no difficulty. Considering I was about to sell my manual-shift car because I could no longer coordinate my movements, I'd say I had 100% improvement on that issue.


MacKintos,
what was your status when starting abx? Were you RRMS, SPMS or PPMS? Jow lon have you been taking abx? What was your experience?
tHx


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PostPosted: Sun May 19, 2013 4:09 am 
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thanks you for the replies,
agatha,

what was your edss before starting the abx protocol?
how long since starting them did you start seeing improvements in your legs strength/balance?


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