This Is MS Multiple Sclerosis Community: Knowledge & Support

Reading the CPn website there are only a few MS patient stories following the Wheldon protocol, and few that comment on mobility improvements, balance and/or legs strength.

So i wanted to know if anyone following the Wheldon antibiotic protocol has seen improvements in their walking/balance since starting the protocol? if so, how long did it take from starting the protocol was it till you saw mobility function improvements?
which abx did/do you/they take?
have they continued to improve?

or even if anyone has heard/read of someone else having mobility improvements from abx?

As taking abx is a risky decision, i dont want to start the protocol if there is no hope of me regaining mobility

i currently have an EDSS of 6

Hi Adam
Yes, I did the Wheldon protocol for RRMS and my walking and balance have improved substantially. I was never bad enough to need a mobility aid but I experienced frequent foot drag and a feeling that my legs were so heavy it was hard to walk. I also had trouble going down stairs both because of leg strength and balance. Since the treatment these symptoms (and some others) are all gone - I am very very grateful to Dr Wheldon.

I would thoroughly recommend trying the abx although of course the treatment is not easy in the early stages because of the herx reactions.

Good luck with your journey.

Yes - I'm back to wearing high heels and dancing around with no difficulty. Considering I was about to sell my manual-shift car because I could no longer coordinate my movements, I'd say I had 100% improvement on that issue.

_________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

MacKintos,
what was your status when starting abx? Were you RRMS, SPMS or PPMS? Jow lon have you been taking abx? What was your experience?
tHx

thanks you for the replies,
agatha,

what was your edss before starting the abx protocol?
how long since starting them did you start seeing improvements in your legs strength/balance?

Hi Adam
I don't know my EDS score but I could still walk around without a stick albeit with difficulty. Using stairs I had to use the handrail and take it very slowly and concentrate hard. Other symptoms which have also resolved are slurring speech, difficulties in finger coordination, swallowing difficulties, numbness and tingling in various places.
It's hard to remember but I think it was a few months into the abx that I saw improvement in gait. I had improvements in brain fog and energy after a few weeks. The treatment is muddling in the first few months because you have patches during or after the metronidazole pulses where you feel worse as the bacteria die and generate an inflammatory response and then when your body clears away the junk you notice symptom improvement until the next pulse of metronidazole which kills the next lot of bacteria. It is a rollercoaster but the good patches let me know I was on the right track. Even the bad patches were weirdly encouraging because it was evidence that bacteria were dying - metronidazole on its own shouldn't make you feel that bad. I remember a couple of hours after taking the very first tablet of metronidazole all the areas where I had MS symptoms started 'fizzing' so I knew the meds were doing something to the MS.