I too have also decided to give antibiotics a try. I actually made my decision over a month ago, but could not find a cooperative doctor until recently. He wanted to test me for CPN but before we could do the test I came down with a bad urinary tract infection. Which is probably a good thing, since apparently you can test negative for CPN and still have an infection in the cns, and this just jumpstarted my antibiotic therapy.
So here is a rundown of what has happened so far. Dr. wrote a prescription for ciprofloaxin 500 mg twice daily for U.T.I. Ciprofloaxin crosses blood brain barrier well and is effective against CPN. I took it that evening and was up all night with the sensation that I could not breath, since I experience this from time to time anyway, I thought maybe it was just a fluke. The next morning I got up to go to work and took my second dose. Within a few hours the same thing, this time only worse. Very similar to what Karrie experienced and has explained elsewhere. I also could see myself having to take an ambulance ride to the hospital. I thought I was having a reaction to the cipro so I called the doctor and they wrote another prescription for doxycycline 100 mg twice daily. I've been taking it for about 3 weeks now.
The first couple of weeks on doxycycline I didn't notice any real change and I didn't experience any breathing difficulties. I had been wondering if what I had felt on the ciprofloaxin was mabe they herxheimer reaction. From the research I had done ciprofloaxin quickly spikes in blood concentration where as the tetracycline antibiotics are more of a slow build. So earlier this week I decided to use myself a guinea pig and instead of spacing my doses of doxycycline I took 200 mg at the same time in hopes of getting a quicker spike in blood concentration and duplicating the effects I had on the ciprofloaxin. I did indeed get the same sensations of not being able to breath, although not quite as intense. In my mind this tells me that in all likelihood what I experienced was the herxheimer reaction. I'm going in to see the doctor this week to convince him to continue me on antibiotics, if he will not go along I'm going to go it alone. Ill keep you all up to date on how it's going.
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