Pulses

A forum for the discussion of antibiotics as a potential therapy for MS

Pulses

Postby rdahlson » Sun Dec 15, 2013 12:59 pm

Hello,
I have just added Azithromycin to my regimen after 2 weeks of Doxycycline 200 mgs dailey.
I am somewhat confused about tthe pulsing part. Would someone mind explaining it to me
in the simplest of terms?
Thank You,
Roy
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Advertisement

Re: Pulses

Postby marcopolo » Mon Dec 16, 2013 11:10 am

Wheldon Protocol

Doxycycline 100mg Once a day

Take this alone until well tolerated

Azithromycin 250mg Mon, Wed, Fri

OR

Roxithromycin 150mg x2 a day

Add one OR the other to the 100mg Doxycycline

When the above is well tolerated add another 100mg of Doxycycline

Metronidazole also called Flagyl Pulse

When the first two antibioticsi are well tolerated start pulsing the third. For one day, every three to four weeks initially. Increase the number of days per pulse gradually to five days.

Metronidazole 400mg x3 a day

or 500mg x3 a day

Dosage varies from country to country



Tinidazole 500mg x2 a day

This is an alternative to Metronidazol/Flagyl
marcopolo
Family Member
 
Posts: 25
Joined: Fri Apr 12, 2013 4:18 pm

Re: Pulses

Postby rdahlson » Mon Dec 16, 2013 11:43 am

Fantastic! Thank You
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Re: Pulses

Postby marcopolo » Mon Dec 16, 2013 12:31 pm

Remember to increase the dosages only when what your taking is well tolerated and above all
make sure you take a good probiotic....Good Luck

For feedback and more good info go to...http://www.CPn Help.org/
marcopolo
Family Member
 
Posts: 25
Joined: Fri Apr 12, 2013 4:18 pm

Re: Pulses

Postby rdahlson » Wed Dec 18, 2013 1:13 pm

A log of my MS journey.

Diagnosed PPMS 12 years ago but have had symptoms for 20 or so years; Never saw a Doc because everything eventually cleared up until my left hand went partialy numb and stayed that way. Since then, steady progression until wheelchair boubd.
I have always felt my MS was triggered by an infection but never felt my neuroligist was open to the idea.
Started this protocol 2 weeks ago, around Dec. 1, 2013 at 100 mg Doxycycline x 2 times daily; just added Azithromycin MWF. 250 mg.
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Log 2

Postby rdahlson » Sat Dec 28, 2013 11:32 am

Just finished my second week of Azithromycin 250 mg, Mon, Wed,Fri. combined with Doxycycline 200 mg daily. So I have been on Doxy almost a month now. I have not had much reaction so far, other than I FEEL better, but no real gains in muscular strength. I did use my walker a few days ago after being wheelchair bound for most of the past year; which is something.

Roy
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

When to start

Postby rdahlson » Sun Jan 05, 2014 8:21 pm

I will be starting week 6 of the protocol with very mild flu-like symptoms, so far so good. I was thinking of starting the pulses around week 9.
Is that too soon? I feel pretty good.
Roy
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Re: Pulses

Postby rdahlson » Fri Jan 10, 2014 10:00 pm

I just finished my 4th week of Azithromycin 250 mg, M, W, F. and 6th week of Doxycycline, 200 mg daily. Had not had much reaction until Wed, Fri this week with headache and bodyache. Hope this is a good sign.
Roy
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Re: Pulses

Postby SarahLonglands » Sun Jan 12, 2014 5:39 pm

Hello Roy! Best to start pulsing after 3 months: the longer you leave it the easier it will be, believe me!
Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Thank You

Postby rdahlson » Mon Jan 13, 2014 5:34 pm

I will wait until I finish week 12.
I am still not walking, but feel better overall than I have for months. Maybe years.
Just a little impatient.
Roy
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Re: Pulses

Postby SarahLonglands » Tue Jan 14, 2014 6:59 am

Good to hear that you feel better over all! Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Logk,3-4

Postby rdahlson » Wed Jan 15, 2014 9:09 pm

Wednesday Jan. 15; In my 5th week of Azithromycin 250 mg, M, W, F. and 7th week of Doxycycline, 200 mg daily. Writing today because I felt well enough to practice with my walker. Not far, maybe 50 ft before I needed to rest, but a victory of sorts nonetheless. I am going to try walking a little every day. Will post results in a few weeks.
Roy
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Re: Pulses

Postby SarahLonglands » Thu Jan 16, 2014 5:59 am

Roy, that is a good way, a little but often! Why not join the cpn help site:your attitude will go down well! Sarah
Last edited by SarahLonglands on Sat Jan 25, 2014 8:31 am, edited 1 time in total.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2105
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Re: Pulses

Postby MacKintosh » Fri Jan 24, 2014 9:24 pm

Roy, I'm responding here so others who are thinking about doing abx will see it. (Welcome to the cpn site, however!)
You posted that you feel so much better but weren't feeling returning muscular strength. Two things to ponder:

1. Feeling much better this early in the protocol is a win, in itself. Many people wait a lot longer to see some improvement.
2. Muscular strength doesn't come back because you take abx. It comes back because you work the muscles. Now's the time to stress them a little and to maybe get some physical therapy, if possible.

p.s. CONGRATULATIONS!!!! Always happy to hear of yet another abx patient experiencing 'impossible' improvements!! ;-)
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
MacKintosh
Family Elder
 
Posts: 465
Joined: Sat Sep 24, 2005 3:00 pm
Location: Chicago area

Re: Pulse/one more week

Postby rdahlson » Sat Jan 25, 2014 2:56 pm

I guess by muscular strength, I really mean balance and coordination. Two things that I would love to see improvement. I have started using the walker a few minutes every other day. I can feel small improvements for which I am grateful but, I am also impatient. There was a beautiful post from a Woman, who like me is new to the protocol. She talked about faith and acceptance which I found very inspiring.
We are all here because we are refusing to give in to this disease, But as She put it "it just is" so make the most of every day.
Roy
rdahlson
Getting to Know You...
 
Posts: 23
Joined: Sat Dec 14, 2013 12:16 pm

Next

Return to Antibiotics

Who is online

Users browsing this forum: No registered users

cron