Antibiotics for treating ms in Australia -- New Member

A forum for the discussion of antibiotics as a potential therapy for MS

Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Mon Oct 15, 2012 7:31 am

Well, I don't think that anybody who started the treatment that long ago was actually in a wheelchair, so I can't answer that! It all depends on where the worst damage in the cns is: I had very little spinal damage so I was able to recover more easily. Tricia's responses look promising though, but you will have to be patient: to start with, the third antibiotic causes most people a temporary setback, which tends to be worse the earlier it is started. This is what causes most people to stop the treatment, thinking that they are having a relapse: it's not an easy thing to do and I think you are both very brave.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby MHP » Tue Oct 16, 2012 10:51 am

Dear jimmy6
thank you so much for sharing your info. I am in the process too of talking to my GP and following Dr Wheldon treatment. As you mentioned there are not many people sharing how the treatment is doing for them that is why people like you are so valuable. I am intending to also share my experience and I have the conviction that Dr Wheldon findings are in the right path!
take care and keep us updated.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Tue Oct 16, 2012 11:21 am

It is a great shame that so few people post here anymore but rather prefer the much more active site of http://www.CPn Help.org. You might try to look there because there are many new people there now, both MS people and people who suffer from other diseases caused by C pn.

Sarah
Last edited by SarahLonglands on Sun Oct 21, 2012 11:15 am, edited 1 time in total.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby CureOrBust » Wed Oct 17, 2012 2:25 am

Anecdote wrote:It is a great shame that so few people post here anymore but rather prefer the much more active site of CPn Help. You might try to look there ....
Do you think it maybe because they are being directed there? :razz:
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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Wed Oct 17, 2012 7:12 am

Of course they are, Cheeky. There is a big link put on the Catalyst transcript by Maryanne for starters and if someone asks me here if anyone apart from me is improving, I have to direct them there................Sarah
Last edited by SarahLonglands on Sat Oct 20, 2012 7:34 am, edited 1 time in total.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby jimmy6 » Fri Oct 19, 2012 12:15 am

Anecdote wrote:Well, I don't think that anybody who started the treatment that long ago was actually in a wheelchair, so I can't answer that! It all depends on where the worst damage in the cns is: I had very little spinal damage so I was able to recover more easily. Tricia's responses look promising though, but you will have to be patient: to start with, the third antibiotic causes most people a temporary setback, which tends to be worse the earlier it is started. This is what causes most people to stop the treatment, thinking that they are having a relapse: it's not an easy thing to do and I think you are both very brave.

Sarah

Hi Sarah thank you for the answer to my e-mail. Mick here and i have a small problem. Tricia has a super pubic catheter and its keeps getting blocked and the urine sample that showed that there was a infection and the doctor has recommended Amoxil 500mg 3 times daily 7 days and he says that it is compatible with the treatment she is taking. I dont know about that because Tricia has never been better and this catheter has been blocking for the past 45 days . Could what they picked up was really dead cells from the treatment that she is taking already. I dont want to bugger up all the good work. That would be almost 2000mg of antibiotics per day for 7 days. Any suggestions Mick.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Fri Oct 19, 2012 6:44 am

Hi Mick, you really need you keep the doctor on your side so I should go along with the amoxicillin since it is just for seven days. It is compatible with the treatment and used to be used before NAC. Some people take it even now, even if they are taking NAC. It is often used for urine infections and they can often be silent.

Hello to Trish!!

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby CureOrBust » Fri Oct 19, 2012 8:31 pm

Anecdote wrote:Of course they are, Cheeky. There is a big link put on the Catalyst transcript by Maryanne for starters and if someone asks me here if anyone apart from me is improvin, I have to direct them there................Sarah
Actually, out of interest, does that "other" website have similar restrictions onto linking here, that here has with it.... B-(
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Re: Antibiotics for treating ms in Australia -- New Member

Postby NHE » Fri Oct 19, 2012 11:58 pm

CureOrBust wrote:Actually, out of interest, does that "other" website have similar restrictions onto linking here, that here has with it.... B-(


Here's historical perspective on why that restriction was put in place by Arron in 2006.
general-discussion-f1/topic39.html#p14518


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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Sat Oct 20, 2012 8:31 am

Hi NHE, The website that Arron was referring to was definitely not www.CPn Help.org: I could hazard a guess as to which it was but I won't. Arron changed the given address of www.CPn Help.org after complaints by such people as Bromley and others but all the links to it used to work, but now they don't. The site can be found with a bit of manual dexterity: http://www(DOT)cpn(NOSPACE)help.org I think the whole thing is very childish and not a bit like the Arron who wrote to me in 2005 as follows:

Sarah-- outstanding news! So happy to hear things are going OK, both in how you feel as well as on the MRIs. That is remarkable.

I have to be the damper here-- Sarah is one person-- so in order to get a trend, MANY of you need to go and get better! How you do it is up to you and your doctor, of course, but certainly Sarah and Dr. Wheldon's willingness to share should help your GP/neuro decide if Antibiotics are a worthwhile experiment in your case. Compiling a list of people who have taken the therapy AND have objective before/after MRIs would be a critical step in building a strong *clinical* case for antibiotics and MS.

Ok, I'm done with my disclaimer.

So happy for you Sarah!
-a

Unlike other sites, such as MS society sites, I thought that ThisisMS was about looking for ways of getting better rather than just living with a disease. All these years I must have been wrong.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby MacKintosh » Sat Oct 20, 2012 1:31 pm

CureOrBust - If you're talking about cpn help, no, we do not limit links back here. We refer to TIMS a lot over there and many of us are unbelievably grateful for ThisIsMS. We learned about the antibiotic protocol here, we connected with Sarah and her amazing doctor husband, David Wheldon, here, and we charted our travails and recoveries here.

No, there is NO problem with linking back to ThisIsMS from the cpn help website, nor will there ever be! We're huge fans of TIMS.

(Sorry to be off-topic, everyone, but what happened to Aaron? Gone?)

p.s. Fr the newbies, I'm one of the antibiotics success stories. I estimate about 95-98% recovery from all manner of bizarre MS synptoms. :-D
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Re: Antibiotics for treating ms in Australia -- New Member

Postby jimmy6 » Sat Oct 20, 2012 7:37 pm

Anecdote wrote:Hi Mick, you really need you keep the doctor on your side so I should go along with the amoxicillin since it is just for seven days. It is compatible with the treatment and used to be used before NAC. Some people take it even now, even if they are taking NAC. It is often used for urine infections and they can often be silent.

Hello to Trish!!

Sarah

Hi Sarah thank you for your advice. It made me feel a lot better when i turned on the computer and found your e-mail . I must admit that i was worried about upsetting the treatment. All is well and i will stay in touch. Mick & Tricia.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby NHE » Sun Oct 21, 2012 12:49 am

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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Sun Oct 21, 2012 8:12 am

NHE, I have seen most of these before, but none of them say why a link to www.CPn Help.org doesn't work anymore. They did when Arron was the chief moderator.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby euphoniaa » Sun Oct 21, 2012 8:55 am

Anecdote wrote:NHE, I have seen most of these before, but none of them say why a link to http://www.CPn Help.org doesn't work anymore. They did when Arron was the chief moderator.

Sarah

Sarah, the link in your post above takes me right to the site. :confused:
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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