Antibiotics for treating ms in Australia -- New Member

A forum for the discussion of antibiotics as a potential therapy for MS

Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Sun Oct 21, 2012 9:10 am

Strange, because it doesn't on my computer: I must get out David's laptop and try that. :?
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby MacKintosh » Sun Oct 21, 2012 9:15 am

For the heck of it, I clicked on both of Sarah's references to cpn help. Neither works for me. I get the 'internet explorer cannot display...' message on each of them.

What's funny is, CPn Help is solely an informational site, doesn't accept any commercial messages and is self-supporting. It complements, but does not displace, what ThisIsMS does. JimK (the site owner) simply established it as a place to centralize all things related to chlamydia pneumoniae and its treatment.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Re: Antibiotics for treating ms in Australia -- New Member

Postby Katman » Sun Oct 21, 2012 9:22 am

And my click was rewarded with basically the same, but asked if I wanted www.CPn Help.org.

Rica
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Sun Oct 21, 2012 10:07 am

So I'm not going mad, then?
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby MacKintosh » Sun Oct 21, 2012 10:31 am

No. at least not in the way you might have, if you hadn't done the antibiotic treatment! I was losing short-term memory rapidly when I began abx. It was one of the first improvements I saw. How wondrous, to be able to recall an entire telephone number without prompting from someone else.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Re: Antibiotics for treating ms in Australia -- New Member

Postby jimmy6 » Tue Oct 23, 2012 6:31 pm

MHP wrote:Dear jimmy6
thank you so much for sharing your info. I am in the process too of talking to my GP and following Dr Wheldon treatment. As you mentioned there are not many people sharing how the treatment is doing for them that is why people like you are so valuable. I am intending to also share my experience and I have the conviction that Dr Wheldon findings are in the right path!
take care and keep us updated.
MHP

Have you started yet? Mick
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Re: Antibiotics for treating ms in Australia -- New Member

Postby jimmy6 » Mon Oct 29, 2012 1:25 am

Anecdote wrote:Hi Mick, you really need you keep the doctor on your side so I should go along with the amoxicillin since it is just for seven days. It is compatible with the treatment and used to be used before NAC. Some people take it even now, even if they are taking NAC. It is often used for urine infections and they can often be silent.

Hello to Trish!!

Sarah

Hi Sarah Day 65 and Tricia has developed intermittent sharp paint in left arm and shoulder. I think that happened to you and your web site said that it lasted for three days? So treatment is working ? All went well with Amoxil treatment, bladder infection cleared up. Mick
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Re: Antibiotics for treating ms in Australia -- New Member

Postby CureOrBust » Mon Oct 29, 2012 2:37 am

Anecdote wrote:So I'm not going mad, then?
Some people are already at their designated destination. :razz:
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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Mon Oct 29, 2012 5:03 am

To Cureo: Cheeky sod!! 8O
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Mon Oct 29, 2012 5:12 am

Mick, if it is the same sort of pain did, it did happen to me but lasted about three weeks. It was so bad I sometimes ended up in tears. It tended to move around, I would think it was going then it would reappear somewhere else. It happened just after my third pulse of metronidazole.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby jimmy6 » Thu Nov 08, 2012 4:57 pm

Anecdote wrote:Mick, if it is the same sort of pain did, it did happen to me but lasted about three weeks. It was so bad I sometimes ended up in tears. It tended to move around, I would think it was going then it would reappear somewhere else. It happened just after my third pulse of metronidazole.

Sarah

Hi Sarah Mick & Tricia here. Well Tricia has had a pretty bad time over the last 10 days . The pain in both her arms and shoulders has been very bad and it starts to happen a couple of hours after she takes the antibiotics.I gave her panadol for the pain but this had a good and bad reaction. Her face swelled up and became very red, her body became hot 38.6, her feet were very cold. I am going to DR today to talk about it as well as pick up third antibiotics. Tricia has lost some of the early gains that she made. Her arms dont move as well as before ,she is starting to slur slightly again. I have read the Relapse and Pseudo- relapse as well as Peripheral Nerve Inflammation and Central Pain in ms index and this sounds like what is happening to Tricia except that Tricia pain has gone on for about ten days and she has got slightly worse.Just come back from the Dr and he has recommended Nurofen for pain as well as given THE FIRST Metronidazole ,which Tricia will try to take in 10 days. Its funny that Tricia did not a bad reaction till 70 days into treatment. I can now understand why some people give up on the treatment after watching the pain on Tricia,s face . But she is not giving up. Mick
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Re: Antibiotics for treating ms in Australia -- New Member

Postby MacKintosh » Thu Nov 08, 2012 5:13 pm

Mick, When the infection is being worked on by the abx, inflammation is the result. Inflammation causes most of our MS symptoms, so, of course, Tricia is experiencing the same 'symptoms' she did before. Pain can be the result of constant inflammation, as well.

While it stinks that she has to experience this, it's a good indication that the medication is doing exactly what it's supposed to do - killing the disease. I had a similar response, a few months into treatment, when a lower back injury site suddenly 'flared up', causing me a couple of weeks of pain and a real need to stay in bed as much as possible to avoid painful movement and difficulty walking. When it subsided, my back felt better than it had in decades and I have NEVER had a relapse of those particular symptoms again. It was worth it, to go through that pain, when the outcome was such a good one!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Re: Antibiotics for treating ms in Australia -- New Member

Postby SarahLonglands » Fri Nov 09, 2012 6:49 am

Mick, my pain, the only real pain I have ever had, lasted about three weeks, so ten days is nothing. You will tend to revisit all the old symptoms, as Mack said, but at least eventually that should be it.

Regards to Tricia!
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Antibiotics for treating ms in Australia -- New Member

Postby jimmy6 » Fri Nov 09, 2012 4:38 pm

Hi Sarah and Mack Thank you for advice. Having both of you there a great comfort .We know now that we are on the right track and i have now altered . stopped Tricia,s doing her morning exercise and to stay in bed till pain has gone .Thank You Mick & Tricia
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Re: Antibiotics for treating ms in Australia -- New Member

Postby jimmy6 » Thu Nov 15, 2012 3:45 am

Anecdote wrote:Mick, my pain, the only real pain I have ever had, lasted about three weeks, so ten days is nothing. You will tend to revisit all the old symptoms, as Mack said, but at least eventually that should be it.

Regards to Tricia!

Hi Sarah Mick here with more problems Tricia got sicker so Dr order blood tests and when the test returned it showed that there was something wrong with her liver so called ambulance and sent her to hospital for u-sound it and more blood tests.The ultra sound showed that the liver on the out side was okay as well as her other organs okay but the blood test as explained to me by the Dr at the hospital say that Tricia liver should operate at 100 but was 400 thats how he explained it to me in lay mens terms. He was not against the antibiotic treatment he just said that Tricia liver is not handling it and that she could have liver failure if Tricia were were to do this long term. He said it was a hard call to make for Tricia to make, he also said to call anytime for any advice . A report will be sent to our Dr and we will talk to him Your thoughts on this would be greatly appreciated
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