This Is MS Multiple Sclerosis Community: Knowledge & Support

Strange, because it doesn't on my computer: I must get out David's laptop and try that.

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

For the heck of it, I clicked on both of Sarah's references to cpn help. Neither works for me. I get the 'internet explorer cannot display...' message on each of them.

What's funny is, CPn Help is solely an informational site, doesn't accept any commercial messages and is self-supporting. It complements, but does not displace, what ThisIsMS does. JimK (the site owner) simply established it as a place to centralize all things related to chlamydia pneumoniae and its treatment.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

And my click was rewarded with basically the same, but asked if I wanted www.CPn Help.org.

Rica

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2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.

So I'm not going mad, then?

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

No. at least not in the way you might have, if you hadn't done the antibiotic treatment! I was losing short-term memory rapidly when I began abx. It was one of the first improvements I saw. How wondrous, to be able to recall an entire telephone number without prompting from someone else.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Have you started yet? Mick

Hi Sarah Day 65 and Tricia has developed intermittent sharp paint in left arm and shoulder. I think that happened to you and your web site said that it lasted for three days? So treatment is working ? All went well with Amoxil treatment, bladder infection cleared up. Mick

Some people are already at their designated destination.

To Cureo: Cheeky sod!!

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Mick, if it is the same sort of pain did, it did happen to me but lasted about three weeks. It was so bad I sometimes ended up in tears. It tended to move around, I would think it was going then it would reappear somewhere else. It happened just after my third pulse of metronidazole.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Hi Sarah Mick & Tricia here. Well Tricia has had a pretty bad time over the last 10 days . The pain in both her arms and shoulders has been very bad and it starts to happen a couple of hours after she takes the antibiotics.I gave her panadol for the pain but this had a good and bad reaction. Her face swelled up and became very red, her body became hot 38.6, her feet were very cold. I am going to DR today to talk about it as well as pick up third antibiotics. Tricia has lost some of the early gains that she made. Her arms dont move as well as before ,she is starting to slur slightly again. I have read the Relapse and Pseudo- relapse as well as Peripheral Nerve Inflammation and Central Pain in ms index and this sounds like what is happening to Tricia except that Tricia pain has gone on for about ten days and she has got slightly worse.Just come back from the Dr and he has recommended Nurofen for pain as well as given THE FIRST Metronidazole ,which Tricia will try to take in 10 days. Its funny that Tricia did not a bad reaction till 70 days into treatment. I can now understand why some people give up on the treatment after watching the pain on Tricia,s face . But she is not giving up. Mick

Mick, When the infection is being worked on by the abx, inflammation is the result. Inflammation causes most of our MS symptoms, so, of course, Tricia is experiencing the same 'symptoms' she did before. Pain can be the result of constant inflammation, as well.

While it stinks that she has to experience this, it's a good indication that the medication is doing exactly what it's supposed to do - killing the disease. I had a similar response, a few months into treatment, when a lower back injury site suddenly 'flared up', causing me a couple of weeks of pain and a real need to stay in bed as much as possible to avoid painful movement and difficulty walking. When it subsided, my back felt better than it had in decades and I have NEVER had a relapse of those particular symptoms again. It was worth it, to go through that pain, when the outcome was such a good one!

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mick, my pain, the only real pain I have ever had, lasted about three weeks, so ten days is nothing. You will tend to revisit all the old symptoms, as Mack said, but at least eventually that should be it.

Regards to Tricia!

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Hi Sarah and Mack Thank you for advice. Having both of you there a great comfort .We know now that we are on the right track and i have now altered . stopped Tricia,s doing her morning exercise and to stay in bed till pain has gone .Thank You Mick & Tricia

Hi Sarah Mick here with more problems Tricia got sicker so Dr order blood tests and when the test returned it showed that there was something wrong with her liver so called ambulance and sent her to hospital for u-sound it and more blood tests.The ultra sound showed that the liver on the out side was okay as well as her other organs okay but the blood test as explained to me by the Dr at the hospital say that Tricia liver should operate at 100 but was 400 thats how he explained it to me in lay mens terms. He was not against the antibiotic treatment he just said that Tricia liver is not handling it and that she could have liver failure if Tricia were were to do this long term. He said it was a hard call to make for Tricia to make, he also said to call anytime for any advice . A report will be sent to our Dr and we will talk to him Your thoughts on this would be greatly appreciated