Karen, I'm kind of in the same position you are. Symptoms have pretty much retreated and I feel 'good' instead of okay much of the time.
When I started this, I committed to doing this for a year, no matter what. (I never went on any of the CRABS so I could prove to myself it was the abx and nothing but the abx that cured me, if indeed I improved.) So, here we are, at almost my ten-month anniversary on abx and I have never had more than a draggy feeling from flagyl pulses. My reactions to the therapy have been almost nil, EXCEPT my MS symptoms are gone, my hair is growing in fuller and with almost no grey (it was going grey fast as the MS started), my thinking is clear and I have decent short-term memory again, plus my confidence in myself and my future has returned. Hmmmm, I think I shall continue the abx a while longer. By my reckoning, I have had cpn for several decades and I wouldn't risk it rearing its ugly head again. I figure another six months of abx cannot hurt me, can only help me and may penetrate into tissue it hasn't yet reached, thereby benefiting me in ways I may never even know about. I'm a firm believer in 'killing this bug DEAD' and if it means a few more months of inconvenience, taking a bunch of meds, I'll do it. My big fear is that I've done a fine job of driving the cpn into hibernation but they'll just come back with a vengeance once they realize it's safe to come out of hiding because there's no abx in my system to finalize their demise. I keep saying this, but it bears repeating; this is an investment in my future, my life, the QUALITY of my life, and I will invest the proper amount of time to ensure I beat this disease, not just temporarily, but permanently.
I've only done seven pulses and I noticed, at month eight, that there was a strange and welcome change in my health and my mental outlook. I've heard this about the eight and nine-month mark several times. I figure, if that happened at eight months and I had quit before I got to that point, I would have shortchanged myself. I would encourage you to keep on for the full year, minimum. Try the tini; people say it makes a huge difference for those sensitive to flagyl.
Remember those instructions on all the abx bottles? It says to finish the course ordered by your doctor, even if you feel better before you finish the pills. It's kind of the same thing; trust the guys who wrote the protocol. You feel better, but you haven't finished the prescribed course. Stay with it.
*** Oh, would you like one of us to cut and paste your initial post over to CPn Help's site, so you can kick the question around over there with the others? Maybe someone else has insight that can help you. I know one of the guys over there did abx, stopped too soon, relapsed a few years later and started all over again. You might want to touch base with him.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi