I think this has already been addressed, but just to clarify: is there any reason the abx protocol can't be intiated while also on copaxone? Are there any contraindications or other reasons why this would not be advisable?
A little background: I was dx in Dec. '03 at age 34 (but had symptoms at least 7 years prior). Tried avonex and it was a disaster. Did copaxone for 5 months and then went off to try and get pregnant. Been off of it for two years (there miscarriages, no live births....but as a side note I do have two beautiful older children). Saw my neuro last week b/c after a month of daily headaches wanted to rule out optic neuritis (was having pain with eye movement, more on this later). She ordered MRI which showed no optic neuritis but did show one new brain lesion one old one enhancing. So, she is anxious to get me back on copaxone. Previous to the pregnancy tries I had been giving serious thought to abx. But, truthfully, the MRI has me a little freaked out and I guess I'm willing to try and cover multiple bases.
On a related note. After the MRI the neuro immediately started me on high-dose steroids, even though I am having bascially no symtoms. I would not have considired myself relapsing if not for MRI data. Is this considered a relapase? Is is typical to do steroids based on MRI alone? She kept saying, "you'll feel a lot better," but truthfully, I was feel pretty darn good. And when she saw me for an exam a couple days befoe the MRI, her exam was also pretty good. Except for jumpy reflexes and an abnormal babinski, everything else looked good. Balance, muscle strength all basically good. I'm just wondering what others know about indications for steroids. I guess I consented because this was the first time MRI had shown active brain lesions (at dx and subsequent scan just showed stable old damage). Any thoughts on this use of steroids?
Back to the pain on eye movement. It has now improved, and I concluded it was due to sinus infection (for which I was on my second round of antibiodics....first amox and then omnicef). I know some of talked about relationship between chronic sinus infection and Cpn etc. Thought some might find that interesting.
One more question/looking for possible input: I also have a positive ANA which makes me more suspicious of autoimmune disease being the key to my
MS (although I lean to the camp that it does not explain all). Any thoughts on possibel relationship to this and Cpn? Or does anyone have data/experience that would relate this more to a different autoimmue thing? Anyone know of a connection between positive ANA and MS?
In closing (if anyone has made it though this verbose missive), please
forgive me for jumping around, remembering that I am on day three of massive steroids. Anyone in my family will testify that makes me more than a little loopy.
(although my sister-in-law thinks it makes me kind of fun).
Thanks to all for any input, insight you may be able to offer.