Dear Frank, I have to ask what you mean by "work?" If you think that working is controlling, limiting, or slowing progression, then, yes, Tysabri might "work" in doing that for SOME MSers. On the other hand, if you think that working is the effective treatment of a factor that is causing damage, your idea of "work" is in line with ours. We are approaching MS treatment with a completely different mindset as compared to most. We are fixing a problem, not just making feeble attempts to keep it on a leash. We reject the ideas that MS is incurable and untreatable. Controlling symptoms and possibly slowing progression is not good enough for us. To anyone who questions what we are doing, we say, "What we are doing is working, and it's safer than the alternatives."
A few months ago I entered a post here to the effect that, with regard to deciding to do a combined antibiotic protocol and sticking with it, people with progressive forms of MS definitely hold an advantage over those with remitting forms. Their vision of where they are headed is clear, and their options are fewer. Sadly, by the time someone with RRMS makes the transition to SPMS, there is much more accumulated damage, but then they will have arrived at the same point of clarity about the future. It's a tough thing to go against the grain and to reject the current popular model of MS. After all, this is a mysterious and problematic disease. My best estimate of the current state of affairs in the medical mainstream is this: they don't have the answers, they are stuck in a narrow mindset and feel comfortable with so much company, they don't really believe in the possibility of effectively treating the disease, and so, there is huge effort and financial expenditure thrown at tinkering. Tinkering with MS symptoms and processes is all they can imagine to do at this point. It will take decades for a major shift in thinking and treatment to occur. Perhaps you feel you have plenty of time as your MS is classified as remitting. Please, every time you have a relapse, remember what you have learned here, and weigh your accumulating damage against the comfort of doing what the majority does. My husband has SPMS, and he doesn't have decades to wait for the medical mainstream to change. We are comfortable with the safety of his treatment, and we are thrilled with his improvements.
If I seem very intense about this, your impression is correct. I want to help you, but acceptance of the concept of treating MS with a combined antibiotic protocol requires a huge change in thinking, time spent investigating the information yourself, and a thorough reassessment of the soundness of the premises of your "comfort zone." It doesn't matter how many neurologists push the current popular MS medications at us for lack of something better, my comfort zone does not include settling for risky treatments that MIGHT help SOME MSers SOME of the time while my husband's body and mental abilities decline. It does include committment to an effective treatment of the illness (not the symptoms) that is comparatively safe and even comparatively inexpensive.
Last edited by mormiles
on Sat Jan 06, 2007 1:38 pm, edited 1 time in total.