Frank ABX diary

A forum for the discussion of antibiotics as a potential therapy for MS

Postby SarahLonglands » Sun Oct 28, 2007 3:58 pm

Hi Frank, again good luck with the ligament this time!

By the way, if you can walk for 45 minutes with that pain, that is pretty good going.

Sarah :)
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Frank » Mon Oct 29, 2007 11:34 am

Thanks, I'll be back :)
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
Frank
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Posts: 543
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Postby Frank » Mon Nov 05, 2007 6:03 am

I got out of hospital this moring. Everything went fine so far.
The pain after surgery were mild to moderate but all in all easy to tolerate. Regarding that they put two screws in my ankle, drilled three holes through the bone and made a millcut to optimize the guidance of a tendon, I'm very happy with my current state.

They also use a new and much more convenient and useable kind of plaster which is more like a plastic ski boot with a textile inlay and an air cushion.

I'm able to walk with two cruthes - only short distances (100 meters) and really slow, but it works fine for inhouse use...

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
Frank
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Posts: 543
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Location: Germany

Postby MacKintosh » Mon Nov 05, 2007 6:18 am

Well, that sounds pretty good! Missed you!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Postby SarahLonglands » Mon Nov 05, 2007 9:59 am

Hello Frank, glad to have you back! The screws, drilling and milling sounds awful, but I like the sound of the new plaster!

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2118
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby Frank » Wed Nov 21, 2007 4:27 pm

Over the past week I completed my 5th pulse. Everything went fine.
So far so good...

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
Frank
Family Elder
 
Posts: 543
Joined: Wed Jan 03, 2007 4:00 pm
Location: Germany

Postby SarahLonglands » Thu Nov 22, 2007 3:50 am

Excellent, but how is your leg?

Sarah :?
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2118
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby Frank » Thu Nov 22, 2007 4:10 am

My leg feels pretty good at the moment - its nothing more than an inconvenience.
Next week I will get element added to my "plaster" that will allow me to bend the foot 10 degrees forward - to avoid stiffnes in the ankle.
Hopefully this will also make the walking a bit more comfortable.

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
Frank
Family Elder
 
Posts: 543
Joined: Wed Jan 03, 2007 4:00 pm
Location: Germany

Postby MacKintosh » Fri Dec 07, 2007 3:05 pm

Frank, how goes it?
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
MacKintosh
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Postby Frank » Sat Dec 08, 2007 4:17 am

Nice of you to ask.
Everything is going fine, I can now move my foot a little bit up and down without any problems.
Next wednesday I'm getting rid of my plaster. I will have to use the canes for the first few days, but I'm really looking forward to sleeping without a brick on the foot :)!

Next monday I'll start my 6th pulse.

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
Frank
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Posts: 543
Joined: Wed Jan 03, 2007 4:00 pm
Location: Germany

Postby SarahLonglands » Sat Dec 08, 2007 7:39 am

All's well that ends well, hopefully, but enjoy your pulse. Any snow yet in Berlin?

Sarah :wink:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2118
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby Frank » Sat Dec 08, 2007 8:59 am

No, unfortunately no snow at all.
I'm afraid its going to be christmas as usual - rainy at around 10 Celsius...

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
Frank
Family Elder
 
Posts: 543
Joined: Wed Jan 03, 2007 4:00 pm
Location: Germany

Postby SarahLonglands » Sat Dec 08, 2007 9:29 am

Same as here!

Sarah :cry:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2118
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby MacKintosh » Sat Dec 08, 2007 10:46 am

Shall I ship each of you some Chicago snow? Please?
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
MacKintosh
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Posts: 468
Joined: Sat Sep 24, 2005 3:00 pm
Location: Chicago area

Postby Frank » Sun Dec 16, 2007 3:15 am

Yea some snow would be really nice - lets ask UPS what they can do for the UK and germany :).

I'm afraid my nystagmus and my spacticity got a little worse.

My VEP on the right eye is a bit more delayed than before (136). Its somehow difficult to judge if corrosponds to a current exacerbation because the previous VEP is from 2005, they use a new VEP device, my general eyesight has changed by 0.25 dioptre and my glases havent been adjusted yet.

The spacticity got worse since maybe three weeks. I mostly feel it in the morning when I want to get up, its a little hard to stretch out the legs. After getting up I only slightly notice it after sitting for a longer time (>1hr).

My neuro adviced me to do a course of steroids because as he says it does not have any negative consequences - I can not really agree with this (I usually feel really lousy for aprox. 6 weeks), but anyway...

I also had some kind of cold during the last week. I didnt have the typical symptoms but was always freezing and tired. It could also have been related to the ABX pulse.

I'm not sure what I'll do, I plan to make a decision until wednesday...

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
Frank
Family Elder
 
Posts: 543
Joined: Wed Jan 03, 2007 4:00 pm
Location: Germany

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