This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 5:01 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 159 posts ]  Go to page Previous  1 ... 6, 7, 8, 9, 10, 11  Next
Author Message
 Post subject:
PostPosted: Sun Oct 28, 2007 3:58 pm 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
Hi Frank, again good luck with the ligament this time!

By the way, if you can walk for 45 minutes with that pain, that is pretty good going.

Sarah :)

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Oct 29, 2007 11:34 am 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
Thanks, I'll be back :)

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Nov 05, 2007 6:03 am 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
I got out of hospital this moring. Everything went fine so far.
The pain after surgery were mild to moderate but all in all easy to tolerate. Regarding that they put two screws in my ankle, drilled three holes through the bone and made a millcut to optimize the guidance of a tendon, I'm very happy with my current state.

They also use a new and much more convenient and useable kind of plaster which is more like a plastic ski boot with a textile inlay and an air cushion.

I'm able to walk with two cruthes - only short distances (100 meters) and really slow, but it works fine for inhouse use...

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Nov 05, 2007 6:18 am 
Offline
Family Elder

Joined: Sat Sep 24, 2005 3:00 pm
Posts: 439
Location: Chicago area
Well, that sounds pretty good! Missed you!

_________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi


Top
 Profile  
 
 Post subject:
PostPosted: Mon Nov 05, 2007 9:59 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
Hello Frank, glad to have you back! The screws, drilling and milling sounds awful, but I like the sound of the new plaster!

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Nov 21, 2007 4:27 pm 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
Over the past week I completed my 5th pulse. Everything went fine.
So far so good...

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Nov 22, 2007 3:50 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
Excellent, but how is your leg?

Sarah :?

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Nov 22, 2007 4:10 am 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
My leg feels pretty good at the moment - its nothing more than an inconvenience.
Next week I will get element added to my "plaster" that will allow me to bend the foot 10 degrees forward - to avoid stiffnes in the ankle.
Hopefully this will also make the walking a bit more comfortable.

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Dec 07, 2007 3:05 pm 
Offline
Family Elder

Joined: Sat Sep 24, 2005 3:00 pm
Posts: 439
Location: Chicago area
Frank, how goes it?

_________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi


Top
 Profile  
 
 Post subject:
PostPosted: Sat Dec 08, 2007 4:17 am 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
Nice of you to ask.
Everything is going fine, I can now move my foot a little bit up and down without any problems.
Next wednesday I'm getting rid of my plaster. I will have to use the canes for the first few days, but I'm really looking forward to sleeping without a brick on the foot :)!

Next monday I'll start my 6th pulse.

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Dec 08, 2007 7:39 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
All's well that ends well, hopefully, but enjoy your pulse. Any snow yet in Berlin?

Sarah :wink:

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Dec 08, 2007 8:59 am 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
No, unfortunately no snow at all.
I'm afraid its going to be christmas as usual - rainy at around 10 Celsius...

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Dec 08, 2007 9:29 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
Same as here!

Sarah :cry:

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Dec 08, 2007 10:46 am 
Offline
Family Elder

Joined: Sat Sep 24, 2005 3:00 pm
Posts: 439
Location: Chicago area
Shall I ship each of you some Chicago snow? Please?

_________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi


Top
 Profile  
 
 Post subject:
PostPosted: Sun Dec 16, 2007 3:15 am 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
Yea some snow would be really nice - lets ask UPS what they can do for the UK and germany :).

I'm afraid my nystagmus and my spacticity got a little worse.

My VEP on the right eye is a bit more delayed than before (136). Its somehow difficult to judge if corrosponds to a current exacerbation because the previous VEP is from 2005, they use a new VEP device, my general eyesight has changed by 0.25 dioptre and my glases havent been adjusted yet.

The spacticity got worse since maybe three weeks. I mostly feel it in the morning when I want to get up, its a little hard to stretch out the legs. After getting up I only slightly notice it after sitting for a longer time (>1hr).

My neuro adviced me to do a course of steroids because as he says it does not have any negative consequences - I can not really agree with this (I usually feel really lousy for aprox. 6 weeks), but anyway...

I also had some kind of cold during the last week. I didnt have the typical symptoms but was always freezing and tired. It could also have been related to the ABX pulse.

I'm not sure what I'll do, I plan to make a decision until wednesday...

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 159 posts ]  Go to page Previous  1 ... 6, 7, 8, 9, 10, 11  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Interrupted's ABX Diary

[ Go to pageGo to page: 1, 2 ]

Interrupted

24

3660

Fri Mar 09, 2012 8:46 am

Anecdote View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: