Vanderbilt

A forum for the discussion of antibiotics as a potential therapy for MS

Re: Vanderbilt

Postby CCSVIAnaMaria » Tue Jun 19, 2012 12:01 pm

I read your post about antibiotics in Multiple Sclerosis (Vanderbilt Protocol) and I'm curious if the good results you had are mantainning today (or if it was a temporary improvement) and what is your type of multiple sclerosis. In Portugal I think that this protocol it is not known, do you know any good sources of information where I could learn more about it? Are there any recent scientific papers about this issue?
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Re: Vanderbilt

Postby SarahLonglands » Fri Jun 22, 2012 10:24 am

Hello AnaMaria, if you are talking to me, yes, I am definitely maintaining my improvements. I had secondary progressive disease of about three years duration and I had had MS as a whole for about eighteen years then.

You could learn more about this by reading the following site: http://www.davidwheldon.co.uk/ms-treatment.html Here you will find both information and links to papers, which aren't many since neurologists are by and large still welded to the autoimmune idea, in fact the only neurologist who I know is willing to treat in this way is Ram Sriram from Vanderbilt. I was treated by the above David Wheldon, my husband, who is an FRCPath in Microbiology.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Vanderbilt

Postby alexi » Sat Jun 30, 2012 1:59 pm

This is a question for Sarah ... not sure how to go about this, though.

Anyway, I have had MS for about ten years and am doing fine except for a lot of numbness from the waist down. I have been taking the two mentioned antibiotics for over three years ... did pulse for a number of months, but more recently found that it brought my energy way down. Was not seeing any benefit. I would like to continue taking the two antibiotics but not every day ... maybe one or two weeks per month?
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Re: Vanderbilt

Postby SarahLonglands » Mon Jul 02, 2012 7:12 am

Alexi, if you have been taking the three abx for three years and are getting no response when you take the pulses of metronidazole you should be able to go intermittent by taking two weeks of antibiotics and two weeks off. That is what I did.

You only mention taking two antibiotics, though: what are you taking?
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Re: Vanderbilt

Postby alexi » Wed Jul 04, 2012 1:05 pm

Sarah,

Thanks for your prompt response! I had to dig up some calendars from previous years, so it has taken me a bit longer.
Apparently, I have been taking the antibiotics from at least 2007 ... pulsing for about 12 months from 2007 through most of 2008. In early 2009, I retired to my college town in Bloomington, Indiana. Since then, I have only pulsed a few times and found the effect it seems to have on my energy level to be unacceptable. I hadn't noticed any significant side effects when I was pulsing in 2007-2008. Sometime after I began taking the antibiotics I had a brain scan and no active lesions were found, so I continued with the abx. I now take azithromycin and doxycycline, and also Copaxone which I have taken all along. Very confusing! I haven't been speaking in the forums because I really haven't had any useful information to share.

My question is ... would it be worth taking the two antibiotics two weeks of each month and not take flagyl at all?

Sarah, I've enjoyed your paintings on the Web; having been an art major so long ago, I have been trying to get back to painting myself. Alexi
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Re: Vanderbilt

Postby SarahLonglands » Thu Jul 05, 2012 10:10 am

Alexi, I don't know: I don't know if anyone does! Some people take minocycline for immunomodulation and some people take doxycycline for the same reason. They take it every day, though. On the other hand, I don't take anything ad am far from getting worse, so I think it is up to you.

I'm glad that you like my paintings: I'm doing some large pen and ink drawings at the moment, of a metaphysical nature!

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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