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A forum for the discussion of antibiotics as a potential therapy for MS

Postby sojourner » Sun Sep 02, 2007 8:28 am

Yes, Robbie

Why not give abx a try?

As to the whole abx resistance thing. If one looks past the media hype and a cursory investigation of what abx resistance is, you will see that as Minai and Sarah so correctly pointed out----combination abx is exactly what prevents resistance. Contrary that what some people think, these combos of medicines were not just flipantly recommended, there is a good deal of excellent microbiological work behind these recommendations.

I am much more concerned about the amount of abx pumped into the food supply as the engine driving abx resistance than I am about the combos of abx my husband is taking.
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Postby robbie » Sun Sep 02, 2007 9:10 am

I will definitely try it if i can get the drugs.
Had ms for over 19 years now.
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Re: Just try it

Postby Lyon » Mon Sep 03, 2007 7:39 am

gwa wrote:Also, Lyon, I am becoming cynical about some of the new trials because the ABCR companies are footing the bills and placing their product in the mix.
Hi gwa,
Can't defend myself on that one, I agree with you :oops:
Bob
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Postby tory2457 » Mon Sep 03, 2007 11:47 am

Hi Robbie,

I was diagnosed with MS in 1990. My first symptoms were in 1987; my docs ordered MRI's only -in order to diagnosis me. In the years since, I remained RRMS, and for whatever reason my health has been pretty good.

After much reading on MS/Lyme I decided to find a lyme literate doctor and get tested.
I never found a tick on me nor a bulls-eye rash; 65% of us don't. I since learned I live in a tick "hot spot".

I tested "negative" through a lab that specializes in Tick-Borne Illness, although I do have positive lyme bands on both the IgG and IgM. Testing negative by CDC standards is fairly common. According to the CDC testing is for surveillance purposes only; they state that LD must be a clinical diagnosis. Much like MS is a clinical diagnosis.
A lyme doctor says having one band positive is significant.

Prior to visiting my lyme doctor I was on Copaxone for 2 years; I have lesions in both my brain and upper cervical.

I'm doing well, feeling better each day. Getting rid of this bacteria and all the co-infections that go along with Lyme Disease isn't an easy road.

I had new MRI's roughly 4 wks ago, and some of my lesions have lightened, some are scarred, but none have enhanced and I don't have any new ones. This has never happened before.

From reading, I've heard some say lyme docs always "find" lyme disease? not true, I can tell you that an educated doc will order tests, then put you on a trial of antibiotics and wait to see how you feel. This is called a Jarish Herxheimer reaction. Then with all your test results and your reaction to antibiotics will a diagnosis be made.

There are sites that will help you find a doctor in Canada to rule Lyme Disease in or out.

My opinion for you is to look down this road. Personally I realized I didn't have anything to lose when I did.

best to you,
tory
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Postby Anecdote » Mon Sep 03, 2007 12:18 pm

Actually, Tory, Robbie is so desperate he is trying to get his GP to treat in the first instance. Many people who are very disabled find this comparatively easy because of the lack of other options.

Cpn and lyme disease are covered by the same treatment, so it doesn't really matter: getting going is what counts. I went headlong in with full dose doxycycline and I am glad I did.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby tory2457 » Tue Sep 04, 2007 4:32 am

Sarah,

I can't agree with you more! Getting started as quickly as possible is the most important thing.

That's why I offered a Lyme doctor; he lives in Canada where lots of people are getting treated.

canlyme can help him find a doctor other than his GP.

tory
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Postby Katman » Thu Sep 06, 2007 10:23 am

Watching and reading - and hoping. It looks as though Robbie has made his decision. I stopped by to say how happy I am for you to have done so. My score 3 1/2 years ago was 6.7, given to me by my neurologist, who told me not to come back right after I asked for a new number - 3 to 3.5. He knew I was on antibiotics and had stopped Avonex. He said "You disobeyed my orders by doing that " - NOT - "Isn't that wonderful - why are you better?"

Rica
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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Postby MacKintosh » Thu Sep 06, 2007 2:44 pm

Well, I know why I'M better. Antibiotics stopped my dramatic downhill slide within ten days. My brain fog lifted remarkably and then I was able to reason and plan better for my ongoing treatment. I don't have Copaxone or anything else on my radar to muddy up the water, as I refused to touch a drug the doctor couldn't explain to me. I do, however, understand the simple, clear science of killing a bacterial cause of MS in its three life-phases and I have done it.

23 months on Wheldon antibiotic protocol. EDSS 0.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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