lyme

A forum for the discussion of antibiotics as a potential therapy for MS

lyme

Postby robbie » Fri Aug 31, 2007 6:43 am

I think that we need to seperate ms and lyme. Antibiotics can not work on ms other than their antiimflamatory affects but with lyme they can actually kill it stopping it from more damage. Their must be a small precentage of the 2.5 million people diagnosed with ms that actually have lyme or some other parasite that left unchallenged will do nervous system damage. It seems the only way to get rid of any doubt is to find a doc that will rx you some antibiotics. So is it fair to say that if you notice extreme improvements from abx you don't have ms at all.
Had ms for over 19 years now.
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Postby havingms » Fri Aug 31, 2007 12:01 pm

I think that there are some that believe that MS is a whole category of symptoms and not a individualized disease. If antibiotics helped me improve or even just stopped the progression I'd be very excited. Its worth a try for sure. What other options do we have at this point?
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Re: lyme

Postby Lyon » Fri Aug 31, 2007 2:01 pm

robbie wrote:Antibiotics can not work on ms other than their antiimflamatory affects but with lyme they can actually kill it stopping it from more damage. Their must be a small precentage of the 2.5 million people diagnosed with ms that actually have lyme or some other parasite that left unchallenged will do nervous system damage.
Hi robbie,
As you know, there are people who think a variety of things about MS. What you mentioned above is one way of looking at it but there are also people who feel that MS itself is driven by bacteria and that abx should/could control that. I don't have the proof to argue one way or the other.
robbie wrote: So is it fair to say that if you notice extreme improvements from abx you don't have ms at all?
The only thing certain about MS is that NOTHING is certain about MS. Taken exactly as you stated above, if one person takes abx and notices extreme improvements they should be very happy and not look the gift horse in the mouth. In the grand scheme, the experience of one person is interesting but proves nothing.

Evidently for a very long time the poultry industry has been giving ongoing antibiotics to their birds to fatten them up and a recent study showed that, for the little gain in weight it isn't cost effective.

Additionally, the practice has created antibacterial resistant strains of bacteria. Not to make a judgement about abx therapy but "IF" it proves to be a valid therapy, it's probably worth the risk but "IF" it's not valid, it's just adding to the already increasing problem of resistant bacteria. A valid trial of abx in a clinical setting needs to be done soon to either credit or discredit it so that question is answered one way or the other.

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Postby SarahLonglands » Fri Aug 31, 2007 4:08 pm

Robbie, I have MS, not lyme, absolutely for certain, but my MS was set in chain by a Cpn infection.

However, its gone midnight here, so 'night all!

Sarah :wink:
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Minai » Fri Aug 31, 2007 4:20 pm

Re: Resistance. This is exactly why the antibiotic protocols being used here, are combined. To prevent resistance. And trials have been done/are being done that are proving this: Harvard Study
Last edited by Minai on Sat Sep 01, 2007 9:00 am, edited 1 time in total.
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Postby gwa » Fri Aug 31, 2007 7:39 pm

Minai,

What Harvard study are you referring to at the end of your post? When I click on the link, I get a technical error.

gwa
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Postby robbie » Sat Sep 01, 2007 6:50 am

A valid trial of abx in a clinical setting needs to be done soon to either credit or discredit it so that question is answered one way or the other

Just don't have the time for that.
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Postby mom10789 » Sat Sep 01, 2007 7:34 am

robbie do you take ABX
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Postby robbie » Sat Sep 01, 2007 7:48 am

not yet mom but i will if i can get the drugs, it will be my last ditch effort to fight this.
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Postby SarahLonglands » Sat Sep 01, 2007 7:52 am

Just don't have the time for that.


Neither did I. Neither am I a chicken or a turkey being fattened up for thanksgiving.

These protocols are made by medical microbiologists who know all about resistance of the pathogen and how to avoid it, so that isn't a problem.

For me it was valid treatment because without it, my disease was developing so rapidly I would be dead by now, at far less than the "near normal lifespan" supposed to be possible these days for people with MS. I couldn't have waited for a trial.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby mom10789 » Sat Sep 01, 2007 8:02 am

do you live near TO
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Postby mom10789 » Sat Sep 01, 2007 8:32 am

Robbie i know it is hard to fight my favourite line is you will feel worse before you will feel better in my case i don't think that can happen pain is probably my biggest issue i've been on doxy since aug 16 and i do feel alot better my head is clearer now i've has other issues with UTIs but that has almost cleared my gp is awesome but i'm going to dr brunett at kinfston general he is suppose to be really good and chemo is not his drug of choice he is involved in a lipitor trial which i started taking only 20 mg my gp is cool just very cautious but i can move my legs around for the first time in two years ok only on the bed BUT
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Just try it

Postby gwa » Sat Sep 01, 2007 8:34 am

I agree robbie that there is not enough time for some of us to wait for a trial. The mice trials would probably start first and take up years. :D :D

What do you have to lose by trying the abx which obviously is helping some that have tried it? If it helps you will know. If it doesn't help, very little money will have been spent to find out, and you will be no worse than when you started.

Also, Lyon, I am becoming cynical about some of the new trials because the ABCR companies are footing the bills and placing their product in the mix. For example, if the estriol trial, which is now going on at UCLA, helps it will be totally unclear if it will work without the Copaxone.

The clock continues to tick for those of us that are not in great shape.

gwa
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Postby Minai » Sat Sep 01, 2007 9:13 am

Hi GWA,

Try my Harvard study link, now. It had worked fine for me when I posted it; but didn't work for me, now, either. So, I just edited the link to a different article about the study.

Ideally, I would like to link to the original article mentioned in 'Nature.' But one must pay to view it.
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Postby gwa » Sat Sep 01, 2007 9:18 am

minai,

Good paper on the research. That is what is being done now with the Vanderbilt ABX therapy.

gwa
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