When the dust settles, there are going to have to be some changes that follow the realization that so many MS specialist neurologists were dead wrong. I was examined by 2 at Chapel Hill Med Center who said I was too old (55) and had had a series of microinfarcts (small strokes) They put me on a brain twisting drug that alarmed my physician husband enough to insist that I stop it. Then began more searching to find the cause of my increasingly swift deterioration (I was PPMS). Finally I was diagnosed by the neurologist to whom my husband refers patients. I had my 2nd MRI (worse than the 1st), deterioration of physical facility, my VEP test added to the diagnosis, and 2 lumbar punctures, all of which pointed directly at MS. Yes, I have PPMS and am GREATLY, HUGELY better after my 3 years on abx. So, all this will need some deep soul-searching and rethinking on the part of the whole structure.
None of this matters a whit. What matters is that you give yourself a chance to reclaim any lost ground that you possibly can. My husband say that these are not dangerous drugs and it is in the interest of everyone affected to give it a try.
Last edited by Katman
on Sat Sep 08, 2007 2:21 pm, edited 1 time in total.
2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.