This Is MS Multiple Sclerosis Community: Knowledge & Support

Shell, If getting better equals guilt, I should be carrying a bushel basket of guilt. But I don't.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

tried all the legal stuff
mj pills,sativex,morphine etc but mj works best and quicker smoked
sativex is great for people that have never smoked it
shell

When the dust settles, there are going to have to be some changes that follow the realization that so many MS specialist neurologists were dead wrong. I was examined by 2 at Chapel Hill Med Center who said I was too old (55) and had had a series of microinfarcts (small strokes) They put me on a brain twisting drug that alarmed my physician husband enough to insist that I stop it. Then began more searching to find the cause of my increasingly swift deterioration (I was PPMS). Finally I was diagnosed by the neurologist to whom my husband refers patients. I had my 2nd MRI (worse than the 1st), deterioration of physical facility, my VEP test added to the diagnosis, and 2 lumbar punctures, all of which pointed directly at MS. Yes, I have PPMS and am GREATLY, HUGELY better after my 3 years on abx. So, all this will need some deep soul-searching and rethinking on the part of the whole structure.

None of this matters a whit. What matters is that you give yourself a chance to reclaim any lost ground that you possibly can. My husband say that these are not dangerous drugs and it is in the interest of everyone affected to give it a try.

Rica

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2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to  flagyl. 90% normal good days-50% normal bad days. That is a good thing.

but doesn't drive you nuts

Shell,
Yes it does drive me nuts, but I am even more angry at my neuro who told me that I was progressive, "probably primary" and had nothing to offer but learning how to self cathaterize.

Sheesh, thank goodness for the internet which allowed me to find the information about antibiotic treatment which gives me hope...something that was sadly missing at the start. Yes the abx treatment is a long haul and I sometimes am scared at my reactions, but the science behind it makes sense to me and the help from others at cpn.org is fantastic for hand holding along the road.

I now have very little energy to spare for the medical establishment refusing to even consider a different approach...I need all my energy for rebuilding my body to restart my life. Dimwits (the establishment, not pwms) can wait.

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Progressive MS dx. 12/06. Currently on CAP for CPN: Wheldon protocol. LDN 4.5ml.

best of luck
i always have the threat of chemo over me
i know i have ms but i've always thought something else was the matter
no one gets as many infections as i do
but none since i started aug 16 woo hoo and i don't have any bladder issues anymore big surprise
that was 19 months of my life and a urologist who just gave a rx because i have ppms
i want their job they are like weathermen take a guess if you get it wrong
'oh well'
shell