Yes it does drive me nuts, but I am even more angry at my neuro who told me that I was progressive, "probably primary" and had nothing to offer but learning how to self cathaterize.
Sheesh, thank goodness for the internet which allowed me to find the information about antibiotic treatment which gives me hope...something that was sadly missing at the start. Yes the abx treatment is a long haul and I sometimes am scared at my reactions, but the science behind it makes sense to me and the help from others at cpn.org is fantastic for hand holding along the road.
I now have very little energy to spare for the medical establishment refusing to even consider a different approach...I need all my energy for rebuilding my body to restart my life. Dimwits (the establishment, not pwms) can wait.