This Is MS Multiple Sclerosis Community: Knowledge & Support

robbie
dud you ever get tested for lyme besides the ELISHA TEST
do your arms hurt
shell

no

not at the present but i remember that my elbows use to hurt bad in the early days.

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Had ms for over 19 years now.

are you still in alot of pain
were you outside alot
did you hunt dear
shell

Yes legs mostly

Yes all of my life always worked outside, farming mostly

Yes from 16 years old till i couldn't anymore

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Had ms for over 19 years now.

how long ms
anyone talk to you about lyme
or a co-infections
shell

15 years

Got a lyme doctor in the beginning and he ruled out lyme but wanted me to start on doxy because of a stomach parasite that he said I had and it would eventually become very bad for me if left untreated. This was a doctor that was considered a quack by his peers. He believed in the non-conventional diseases(lyme,paracitic infections ect.) and sickness that people have, he really took into account your past and your lifestyle and history. At the same time as this doctor was telling me to take doxy I also had a what I was told an excellent neurologist who said you have multiple sclerosis and I want you to start beta interferon right away which was the new hope in ms research.
Hear you have a doctor whose opinions and recommendations are not even acknowledged by the main stream medical community and the well revered neurologist with the big fancy desk and the office full of medical books.
After all the reading I do now 15 years later I wish I had stayed with the quack and the doxy. I really think I made the wrong decision; it's starting to haunt me more and more.

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Had ms for over 19 years now.

when i was told i had ms, ifelt alot of relief cuz i wasn't crazy but.........
i'm really scared
too be honest i never read alot but i'm sure taking a crash course
i've always lived along the st lawrence river apparently tick haven
robbie pm tory
i know everyone talks about cpn but i think lyme may be involved
now i'm really scared and i hurt alot
shell

Shell, Nothing to be scared of. This protocol will take care of Lyme disease, as well as cpn.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Yes, don't worry Shell, as Mac says, these abx take care of both Cpn and lyme. They were picked for that purpose.

Robbie, your story is interesting, but all those years ago, even the best quack in the world would have been unlikely to have given you the doxy for long enough. You might even, with relapsing remitting disease, have appeared to be getting better, but then a relapse would have made you think that it just wasn't working. I know someone with CFS and arterial disease who stopped too soon because he thought he was doing so well. A couple of months later he had a stroke, whilst still in his thirties.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.