sarah

A forum for the discussion of antibiotics as a potential therapy for MS

sarah

Postby mom10789 » Sun Oct 14, 2007 3:04 pm

thank you so much for sending me the info for my doctor. it actually served to purposes. i sent it to my husband at work to copy and he read it. so now he is like 'that lady from england went thru that' 'you're gonna be ok,just wait it out' now my doctor,he is so VERY protective. he put me up to 200mg doxy for 6 weeks then he will add the roxy. IF i am herxing
it is bad so we need to take it slowly. so i upped it and i feel like crap again. but my memory is awesome, if i could stay awake long to impress people
thanks again
shell
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Postby SarahLonglands » Mon Oct 15, 2007 2:04 am

Shell, that's wonderful news, not only your doctor but especially your husband. It certainly doesn't help not to have a spouse on board, like a few I could mention.

As well as your memory, I notice an ironic sense of humor in the last sentence!

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby mom10789 » Mon Oct 15, 2007 2:40 am

yeah, which is really cool because alot of humour use to go right over my head
we are a very sarcastic family but i would just cry
so now no more walking on egg shells
now if i could just sleep at night and also control the pain i'd be set
and i've found the joy of ebay, boy did i miss shopping
you can get anything from my shelley china to brand new baby boots without fighting crowds
shell
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Postby Loriyas » Mon Oct 15, 2007 4:51 am

Shell
You are sounding a little better already. I'm so happy for you!
Lori
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Postby mom10789 » Mon Oct 15, 2007 3:52 pm

lori
r u back on mino
shell
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Postby MacKintosh » Tue Oct 16, 2007 12:06 am

Yes! I was WAITING for a post about memory. Clarity of mind seems to come back first for a lot of people. The upside is, you can comprehend. The downside is, you want MORE, and you want it NOW. That can be managed. I am so happy to hear this.

And, as one whose 'other half' basically disappeared while I trudged through this protocol alone, I can tell you I'd rather have an understanding partner any day. Not having him on board contributed to the problems. Give your husband a hug for me!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Postby Loriyas » Tue Oct 16, 2007 4:46 am

Shell
I am now on minocycline 100 mg and 400 mg NAC daily. That's what I could get the neurologist to agree to at this point. But I am not concerned now because I was determined to get an appointment at Vanderbilt, which I did. It is set for early December. I am seeing Dr. Sriram. I am sooo happy to be going. I hope that by seeing Dr. Sriram and starting on the complete antibiotic protocol I can show the doctors here that it does work. Just maybe one of them will become convinced!
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