help help help

A forum for the discussion of antibiotics as a potential therapy for MS

help help help

Postby mom10789 » Tue Oct 23, 2007 3:19 am

you know my head is clear, my legs are getting stronger
my arms and hands are like i put them in battery acid,my ribs feel like they are beeing sueezed by a boa and it would be great if someone would stop pounfing on my shouldei feel like crap im having a western blot done
because i need to know if it is lyme or not
but since sept 2 the pain has become all cunsuming
not sure what to do or try next
shell
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Postby SarahLonglands » Tue Oct 23, 2007 5:37 am

Shell, I don't know much about pain and what you can take, because he only time I experienced it greatly was my fifth or sixth flagyl pule. It then affected my previously nearly parlysed arm and was excruciating for a week or two. Then nothing I tried seemed to help it greatly.

One thing you might try which I didn't know about then is bromelain, supposed to be as good as a proprietary NSAID if used in the right amounts. I tried it recently for my damaged wrist and it does help greatly with the inflammation and pain. It can give you the runs, though. A useful thing about it is that it is to a certain extent anti-chlamydial. You can buy it from I-herb.

Other than that, I'm afraid that to a certain extent, people who suffer with pain either have to stop what is causing it, which means allow the MS free-rein, or stick with it, knowing it will eventually pass. And I hope for you it will pass soon.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby mom10789 » Tue Oct 23, 2007 5:51 am

thanks sarah
i've been in pain for two years but this is just agony
and it is really starting to take its tole
i'm a very mild temper but i'm snapping at people
and non stop sweating
maybe doxy is b=not the drug for me
shell
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Postby SarahLonglands » Tue Oct 23, 2007 6:15 am

Shell, I did sweat a lot at first, which is unusual for me. It went after a month or so, though. Tell me, can you get roxithromycin in Canada? I used it as the second antibiotic and it is much gentler than azith.

Sarah :)
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby mom10789 » Tue Oct 23, 2007 6:28 am

yep
but don't you use that with doxy
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Postby SarahLonglands » Tue Oct 23, 2007 6:58 am

Yes, I did, but I just thought you might try it as the first antibiotic, then move onto doxy a bit later. Some people do that with azith but it is much harder to tolerate.

Have a think about it.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby mom10789 » Tue Oct 23, 2007 9:30 am

thanks
i'll talk to my GP
shell
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