I have been thinking about this past year (as I am sure everyone else is doing). But I am focusing on the CAPi therapy for me during this year. As I look back I can see how far I have come and thought it might be helpful to others to blog about what has changed.
A year ago I was very concerned that things were turning for the worse for me. Vision issues (double vision, nystagmus) had not resolved from the last flare that I had, balance seemed to be worse, "wobbly feeling", brain fog, focus, tremor, dizziness, feet pain, constant bladder infectionsi, fatigue, feeling blue, many days that I just didn't feel well, tingling in left arm, hand and foot
With all of these symptoms my MS was considered "mild". When I went to Vanderbilt to discuss CAP protocol the doctor suggested that because I was considered "mild" perhaps I should wait to start antibioticsi until things worsened. When I posted that on this site many many people here said that I should not wait-that the earlier I start on this the better it may be for me. I am glad those people convinced me to get started which I did last January.
I have done things this past year that I am certain I would not have been able to do with the way I was feeling at the end of last year, if I had not started on antibiotics. For instance, we bought and sold two houses, moved, entertained 90 people here at our home for a holiday party and have had family visit for the past two weeks. I was able to handle all with no problems. I know I could NOT have done this last year.
I have seen improvements in tingling, dizziness, balance, brain fog, vision, have not "wobbly feeling", fatigue, my feet hurt less, I really don't have days where I don't feel well all day (some days I feel better than others but not like before). And no new flare!
My tremor is still around but in looking back over my life it was probably my first symptom many years ago so it may be a long time before it goes away, if ever. I can live with that. Bladder infections are gone but I think it is because I take Flomax as I know I am still going a lot and don't empty as I should. But again, it didn't get worse so I can live with that also.
I am certainly not done with antibiotics by a long shot but am reporting this because I feel that by doing the protocol I have improved a lot. I have a follow up appointment at Vanderbilt in February and an MRI scheduled next week (both brain and spine). I am looking forward to seeing what that shows.
My husband and my family comment often on how well I am doing. They all would be happy to say that I have had marked improvement this past year. My GP comments on how well I am doing and he has become a believer in this also.
I am looking forward to this year and what else will improve. Lastly, I have to say to those who convinced me into starting right away (some rather strongly!) thank you for your concern and motivation. I probably wouldn't have gotten going without it!