After much research and deliberating I have decided to proceed with the antibiotic protocol known as the Vanderbilt protocol. I started with the first antibiotic last Wednesday, January 9th 2008. I will post occasionally on my symptoms, side effects, etc. I started with rifampin twice a day, will add azithromycin next Wenesday and then will do a 10 day pulse of flagyl out of 30 days.
Currently my symptoms include some tingling in my left hand and foot, slight tremor in right hand, vision is okay during the day but need my glasses with prisms at night when my eyes are tired (not needed every night), some dizziness (a swimmy headed feeling), slight nystagmus in the right eye, balance is pretty good but waver on occasion, some stiffness in legs if sitting for an extended period, left foot hurts often. These are some of my current symptoms. Others come and go.
My first week on rifampin I had body aches, increased tingling and overall just didn't feel that great. Aches left after first day or two, tingling decreased to the amount it is now (I notice it is there when I think about it but it is not bad), and overall I feel better. That may very well change after I start the next antbiotic.
I have increased my vitamin D to 5000 IU/day, B12 injections currently every 2 weeks but will change to monthly soon, DHA 500 mg/day,
NAC 1800 mg/day, and will be stopping LDN soon.
That's all I can think of now. I will add more as I go along.