Okay, everyone, here's the final chapter in the saga. (I've also added it to the original post.)
NINETEEN DAYS AFTER.... THIRTY-ONE DAYS OF FLAGYL
My doctor advised me it might be time to stop. I didn't. I toughed it out the last three days, just to say I did flagyl the full month of March. Duh.
Okay, so I did a full thirty-one days of the stuff at full dose. Well, except for the couple of days I retched my doxy and flagyl in the last week of this 'pulse'. I found, if I went back to eating a little something with the abx, I had no troubles, then was able to take them normally again, with only water, after three days. (Might have been unrelated to the flagyl pulse and just a queasy stomach.)
I though I'd wait a few days after the pulse to see if there were any big side-effects. There isn't much to report. A little 'ghost' of a few MS symptoms for a few days, more short-term memory disturbance than usual, a lot of 'vibrations' in my feet, like standing on a little engine, a TON of new petechiae (tiny red dots) that disappeared in a week's time, continued reduction in the marble, then seed, now tiny spot, under the skin on my left hip, I had a little more hair loss than is normal, but it's already growing back in (I can feel a boatload of tiny little hairs about 1/3 inch long) and the half-moons on my fingernails are really trying hard to re-emerge full-time. They still wax and wane and only four are there consistently (thumbs and middle fingers).
Here's an excerpt from an email to my doctor:
"What has happened is all after stopping flagyl. A little foot burn, some involuntary twitching in my toes, some need for additional sleep, some pain in teeth on the right upper side, including a molar that needs a root canal, and some fluctuation in the perception in my 'bad' eye, the one with the optic neuritis that started me on this whole journey."
"The eye was brightening, dimming, brightening, dimming... and at night, when I just closed my eyes to go to sleep, I got flashes of brightness, like when the optic neuritis was at its worst. It was a little scary, but I've been doing the 'shiny red bottle cap' test on the eye every day since it happened and it seems like my color perception is a little improved in that eye now. Not identical to the good eye, but closer than it was."
"Tinnitus has been interesting; it's been varying in volume. Near the end of the flagyl pulse it was really annoying me, like turning up the volume a full notch. Then, it got less in one ear and stronger in the other. I really wish I knew what the issue was, but if flagyl can affect it, there's still hope it will go away altogether at some point. The buzzing in my feet came and went a little more than normal, too, so I'm hoping that will another of Rica's 'whispers of improvement' and it will go away for good soon."
All in all, I'd say there was still cpn to kill and this long pulse was beneficial. I'm going to take April off and sometime in May I'm going to begin another month-long pulse. I'm shooting for 01 July to add rifampicin into the mix for several months. Unless something unforeseen happens, I think I'll go to intermittent therapy on the anniversary of my starting antibiotics, 06 October 2005. Let's first see what tomorrow brings.
Meanwhile, my energy is good, the house is full of sixteen-week old kittens (two off to new homes this week and one left to adopt out), work has been demanding but not a problem at all for me and I made it through a night in the emergency room with my mom without too much backlash (no sleep that night, an earthquake at dawn and an eight a.m. start at work that day). I'd call this pulse a success. P.S. Mom's fine.
Thus ends day 926 of antibiotic protocol.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi