I started abx on oct15,2007 so I am at the 5th month mark. I want to start a blog of my experiences changes improvements .
The first 2 months on doxy 200, azith 250mxf roxy150 bid
The first week or two on doxy alone I had immunomodlatory improvement of walking which faded with additional abx. I must note here that I generally had improvement in walking at least during week of menses ,ok the week after and worsening thereafter.
The worst effects of die off the first 21/2 months were explosive diarhea
and fluish feelings, feverish exhaution, slept a lot
Thankfuly the poops have gone!!
I had urinary problems before starting abx wore pads and was geting worse. This has basically disappeared though sometimes returns to a lesser degree after flagyl, More of an urgency than uncontrollable
I added in rifampin feb red pee. I think this had a strong effect. My right hand has incresed in tightness. Both my feet and less my hand have swelling issues. I am dieing for the swelling prplish feet to go away for good. I was having a ton of cold proablems wuth feet and body temp. Spoke to Dr Stratton who suggested pyruvate 1 hr before abx this has helped a lot with cold. I am eating a lot of probiotics so have avoided yeast thus far. I have a voracious appetite. I have been sleeping a lot it is highly annouing to be so tight when you want to get things done. My kids have been very helpfull my brother has been cooking dinner and been babying me by delivering gatorade and water to my room when I am exhausted. Carbs make you feel better but I will admit I have started to get my vegetable salad and protein urge back.
I haven't had much sexual urge because have been feeling lousy aso hobbling doesn't make yo feel sexy but recently I have started thinking about it again whic I think is a good sign. I actually have this odd therory that orgasms have an antiinflammatory effect. I know when in first romantic year or so of my last significant other having sex often several times daily almost eliminated tightness/spasticity.
Now in some ways I feel the die off is casing greater inflammation and therefore leg tightness I just had my starter mri which I will post and I also wonder if the excess inflammation will cause greater enhancement. I also know that later mri will show improvement. My walking is tight tight better in am bad by late afternoon. I have added in treadmill. Started at 5 min on 1 and am now up to 15-20 and I add in #2 and started upping elevation. I think though I am tighter I have noticed my dropped foot on the other hand has been disappearing. I have not noticed catching my toe on anything or there is not any rub marks on the toes of my shoes! So though the tightness is worse obviously I am walking about but my muscles to lift the foot are better. I have had a lot neck aches one of the first symptoms I got years ago, My sinuses have also ached after this last pulse. My cognitive resoures are greatly improving. My one compaint is I stil have word immediate response problem (brain fart) where it takes me a minute to remember a specific word that I certainly know already. But my memory otherwise is great getting better and the mind is sharp analytical and gaining my business interest again.A lttle bit of woe is me after last pulse but in general upbeat. I have been hanging in my bed a lot more than normal but I am forcing myself up to treadmill now. I also will post blood results have to keep checking on liver for safety. I am hoping to see someimprovements in tightness in 8-12 months time. Also I am hoping to have less heat sensitivity by summer! Ther is no qestion in my mind that this protocol does work but it takes time and I am impatient!! Barbara