Rudi, thanks for the links to more info. I have lots of reading to do as soon as I can get out from under a big pile of work.
NHE, I agree that the relapsing/remitting nature of the disease can make it hard to tell what's working or not. Like McKintosh I had a full recovery & no symptoms in the 3 years after my first attack (ON), and i've followed a diet in that time. The diet could have prevented other relapses, but maybe i wouldn't have had another attack in that time anyway. Now, I have new symptoms. they are not bad, but it's upsetting because I had hoped it was a CIS, and hoped that i'd be able to prevent a 2nd attack through the diet. i still haven't gone back to the Dr for a diagnosis, and I'm not sure that I'm ready to yet, but ON + MRI + three new symptoms-- i know.
It's unfortunate that there is no money to fund clinical trials for drugs with available generics. hopefully there will more and better ways for patients to log their experiences with these drugs in a chartable way, so patterns can be more readily identified. it is so important and valuable that sarah and mckintosh and other "trail blazers" share their stories, even if they are not statistically significant...yet. thank you to both of you!
in the meantime, anything is a calculated risk-- the interferons, antibiotics, doing nothing. after my CIS i chose diet because there was no risk of side effects & a potential benefit. now, i'm looking for something more aggressive, and am interested in learning more about antibiotics.
i do believe that antibiotics have made a huge difference for some with MS. i don't think all of these stories can be chalked up to coincidence and/or the relapsing/remitting nature of the disease. but as inspiring and uplifting as Sarah's story is, and as badly as I want to believe that abx are a magic bullet, I am aware that what works for one person, might not work for all people with this disease. this decision would be easier if there were large scale trials, but the way i'm looking at it now, if i'm possibly one of those people that antibiotics could help, then not taking them might be the greater risk. especially as i've made the decision not to take interferons.
right now i'm going to read as much as i can and start on the recommended supplements. nice to meet all of you