Anyone on CPN or ABX in Australia? Need to chat :-) please

A forum for the discussion of antibiotics as a potential therapy for MS

Anyone on CPN or ABX in Australia? Need to chat :-) please

Postby Liisa » Tue Apr 01, 2008 12:41 am

Hi everyone. I am new to this forum so be gentle with me :-)

I have been reading up alot on Mr Wheldons Cpn treatments etc and was hoping to speak to someone in Australia that has tried it or is currently on t. I have spoken to my GP and asked if he knows or has heard of this anti-biotic treatment.. He hasnt.. H easked me to bring along to him all the info I can get. Have printed oout most of the lit on Wheldons site which is fantastic :-)

Is there anyone here in Oz currently on the treatment?? how did you start and know what meds to use and dosages etc?

AM very very keen to give this a try.

My MS history so far is kind of like this:-
I was diagnosed 2 years ago. Although I did have an MRI 10 years ago which was ""strongly suggestive of demylenation disease"". So I guess I have had MS 10 years...

Main symptoms are extreme fatigue which seems constant (lol) , heavy right leg but can still walk unaided, pins and needles. Have only had 2 episodes. Vision disrupted in eye. thats sort of ongoing. Not getting worse, or better and started 10 years ago. Then had drop foot 2 years ago... Been fairly "lucky" to date I guess :-) compared to some (

Someone please talk to me. Im new here "-)

Liisa - Perth Western AUstralia
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Re: Anyone on CPN or ABX in Australia? Need to chat :-) pl

Postby CureOrBust » Tue Apr 01, 2008 3:54 am

Liisa wrote:I have been reading up alot on Mr Wheldons Cpn treatments etc and was hoping to speak to someone in Australia that has tried it or is currently on t.
I tried it for a year, about 6 months ago.


Liisa wrote:how did you start and know what meds to use and dosages etc?
In Australia, we can get Doxy, Roxy and Flagyl as well as Tini (sorry for the abbreviations). I was on the dosages as recommended on Dr Wheldons site.

I am based in Sydney.

My GP prescribed them for me, and was fairly comfortable with it as he prescribed these meds day-in day-out for other (much less serious) conditions. But he did scoff. Please feel free to ask more, or PM me if you have any other questions.
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Postby CureOrBust » Tue Apr 01, 2008 3:57 am

Almost forgot, I got all my supplements (and still do) through iHerb online ordering. Some of them I just could not find in Aus.
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Postby Liisa » Tue Apr 01, 2008 6:38 pm

Thanks for the reply Cureorbust :-)

Can I ask where I can get a list of the supplements you are using? I have seen sooo many variations etc. Dont know what to choose.
I am currently on Avonex (1 year now) and take fish oil, evening primrose, vit D, and Vit B tablets.

My Neurologist is really hard to talk to so am changing to a new suggested one that comes highy recommended. Better bed side manner hopefully. I wouldnt even dare ask my current Neuro about antibiotic therapy... Have mentioned it to my GP who is interested to read more and possibly happy to prescribe what I need.

Have you found the therapy beneficial??

Liis
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Postby MacKintosh » Tue Apr 01, 2008 6:55 pm

Liisa, The list of vitamins and supplements is also contained within Dr. Wheldon's website.

Check your private mailbox here, as well. All the best...
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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