MacK, you little scamp
Well, you forced my hand, and after not posting here for- EVER, here goes.
My husband,(MS dx'd in May 2004) is chugging along quite nicely. He has been on antibiotics for almost 3 yrs (remembering the 3-5 yr. recommendations by experts).
He feels he is at about 85% overall, and still trending upwards with slight dips while on certain abx.
His regimen consists currently of 3 weeks on 3 weeks off with one loong break of about 6 weeks where he felt awesome (90-95%). Feeling quite good off the meds is a great development, and seems to show he has this infection under control.
He has suffered no ill effects from long term abx use (OHHH those scary abx
), and has been on a bunch of different combinations. Many of which are not the anti-inflammatory kind which could make some people think his good health and improvement might be attributed to those-i.e. minocycline/doxycycline etc.
He has suffered from some awful die-off. One round of biaxin and plaquenil last Christmas had him writhing around the house with pain in his sacrum and right hip......no fun, but a funny thing did happened after this pain....some small issues he had with his right leg cleared up. This has been the general pattern (not always quick, though). Die-off, suffering and improvement in past symptoms. Not to be confused with resolution of exacerbation where symptoms disappear, but actual improvement.
MRIs have been stable with improvement seen in a couple. Some spinal cord lesions disappeared on the last one, but the radiologist said they might have originally been artifactual-which meant he was saying they were never really there.
My husband is out living his life, doing his job etc. The 37yr old lady up the street is in a wheel chair after Novantrone treatment, and electrodes planted in her head, currently taking Tysabri (she's spms so I don't know why!), getting worse daily, husband wants to get a divorce.
So MacK, I guess you are right-abx doesn't work in MS.
But it did work in my husband's MS, oh and my sister's too. Oh yea! and yours, and Sarah's and Rica's and even for Daisy's husband and Joyce's husband too. Oh, and Life on the Ice's. There are others I know.
My thanks too to Thisisms, Sarah, David, Mack, Life on the Ice, Rica, JimK who got us started. First my husband got his hope back, and next he got to keep his life. Not too shabby for MS.