Hey! I've just commenced antibiotics for SPMS and thought it might be beneficial to me, and possibly those in search of a path, to document the process. Have followed Anecdote and Loryias? stories but have found the Grail of progress difficult to follow in others. This is not a criticism simply highlighting my particular needs.
This may then help others choose and will be in point form- professional habit.
I am a 45 year old physician- semi retired
MS 25 years ago in med school- brainstem, then RRMS for 10 years- minimal changes
Broke leg skiing in 2000 along with divorce and developed footdrop- first motor manifestation. Up to then visual, tingling, fatigue etc
NOW: Weak legs, walk short distances with sticks, buggy to shops. Beginning to have weakness in hands. BAD restless legs, tingling all over, fatigue and foggy days.
Live alone (ladies)
and get by.
Tried Avonex, diets, LDN and Aimspro- big on mind body generally happy but not a "MS gave me.... " type.
Read about David Wheldon, assured by a friend who used to work with him that he is not clinically insane, and here we are.
K-PAX vitamins- expensive but seem to have most of whats needed (take extra NAC)
Doxy and Azithro (private prescription)- 3 weeks
Plan first short flagyl pulse tomorrow- happy days!
I plan to update fortnightly unless there are big changes- feel yuch or I change my name to wall jogger, wall gymnast or heaven forbid carpet muncher!